Cargando…

Impact on caregivers of adult patients receiving parenteral support for short‐bowel syndrome with intestinal failure: A multinational, cross‐sectional survey

BACKGROUND: Patients with short‐bowel syndrome and intestinal failure (SBS‐IF) require parenteral support (PS) and may need long‐term home‐care support. This survey assessed the impact of care provision on adult caregivers of adult patients receiving PS for SBS‐IF. METHODS: An online, cross‐sectiona...

Descripción completa

Detalles Bibliográficos
Autores principales:	Jeppesen, Palle B., Chen, Kristina, Murphy, Ryan, Shahraz, Saeid, Goodwin, Bridgett
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2021
Materias:	Original Communications
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9293039/ https://www.ncbi.nlm.nih.gov/pubmed/34368993 http://dx.doi.org/10.1002/jpen.2248

Ejemplares similares

Impact of intestinal failure and parenteral support on adult patients with short‐bowel syndrome: A multinational, noninterventional, cross‐sectional survey
por: Jeppesen, Palle B., et al.
Publicado: (2022)

Impact of Teduglutide on Quality of Life Among Patients With Short Bowel Syndrome and Intestinal Failure
por: Chen, Kristina, et al.
Publicado: (2019)

Independence From Parenteral Nutrition and Intravenous Fluid Support During Treatment With Teduglutide Among Patients With Intestinal Failure Associated With Short Bowel Syndrome
por: Iyer, Kishore R., et al.
Publicado: (2016)

Enteral Autonomy and Days Off Parenteral Support With Teduglutide Treatment for Short Bowel Syndrome in the STEPS Trials
por: Seidner, Douglas L., et al.
Publicado: (2019)

Long-Term Teduglutide for the Treatment of Patients With Intestinal Failure Associated With Short Bowel Syndrome
por: Schwartz, Lauren K, et al.
Publicado: (2016)

Clinical, Economic, and Humanistic Impact of Short-Bowel Syndrome/Chronic Intestinal Failure in Portugal (PARENTERAL Study)
por: Silva, Raul, et al.
Publicado: (2022)

Ghrelin Levels in Children With Intestinal Failure Receiving Long-Term Parenteral Nutrition
por: Vlug, Lotte E., et al.
Publicado: (2022)

Teduglutide for the treatment of adults with intestinal failure associated with short bowel syndrome: pooled safety data from four clinical trials
por: Pape, Ulrich-Frank, et al.
Publicado: (2020)

The Role of a Colon-in-Continuity in Short Bowel Syndrome
por: Verbiest, Astrid, et al.
Publicado: (2023)

Parenteral Nutrition and Intestinal Failure
por: Bielawska, Barbara, et al.
Publicado: (2017)

Apraglutide, a novel glucagon‐like peptide‐2 analog, improves fluid absorption in patients with short bowel syndrome intestinal failure: Findings from a placebo‐controlled, randomized phase 2 trial
por: Eliasson, Johanna, et al.
Publicado: (2021)

Randomised placebo-controlled trial of teduglutide in reducing parenteral nutrition and/or intravenous fluid requirements in patients with short bowel syndrome
por: Jeppesen, P B, et al.
Publicado: (2011)

Etiology and Epidemiology of Catheter Related Bloodstream Infections in Patients Receiving Home Parenteral Nutrition in a Gastromedical Center at a Tertiary Hospital in Denmark
por: Nielsen, Xiaohui Chen, et al.
Publicado: (2012)

What is the optimal lipid emulsion for preventing intestinal failure-associated liver disease following parenteral feeding in a rat model of short-bowel syndrome?
por: Machigashira, Seiro, et al.
Publicado: (2021)

A case of vanishing gastroschisis with short bowel syndrome treated by total parenteral nutrition and intestinal lengthening procedures
por: Guanà, Riccardo, et al.
Publicado: (2023)

Gut microbiota and its diet‐related activity in children with intestinal failure receiving long‐term parenteral nutrition
por: Neelis, Esther G., et al.
Publicado: (2021)

Identifying a subpopulation with higher likelihoods of early response to treatment in a heterogeneous rare disease: a post hoc study of response to teduglutide for short bowel syndrome
por: Chen, Kristina S, et al.
Publicado: (2018)

Errors in administration of parenteral drugs in intensive care units: multinational prospective study
por: Valentin, Andreas, et al.
Publicado: (2009)

Chronic intestinal failure and short bowel syndrome in Crohn’s disease
por: Aksan, Aysegül, et al.
Publicado: (2021)

Small intestinal bacterial overgrowth in children with intestinal failure on home parenteral nutrition
por: McGrath, Kathleen H, et al.
Publicado: (2019)

Apraglutide, a novel once‐weekly glucagon‐like peptide‐2 analog, improves intestinal fluid and energy absorption in patients with short bowel syndrome: An open‐label phase 1 and 2 metabolic balance trial
por: Eliasson, Johanna, et al.
Publicado: (2022)

Monitoring of long‐term parenteral nutrition in children with intestinal failure
por: Zemrani, Boutaina, et al.
Publicado: (2019)

Short bowel syndrome – experience from a home parenteral nutrition centre
por: Braszczyńska-Sochacka, Joanna, et al.
Publicado: (2021)

Nutritional Management of Intestinal Failure due to Short Bowel Syndrome in Children
por: Puoti, Maria Giovanna, et al.
Publicado: (2022)

Case report: Congenital short bowel syndrome
por: Palle, Lalitha, et al.
Publicado: (2010)

Home Parenteral Nutrition in Patients with Intestinal Failure: Possible Undetected Complications
por: Santarpia, Lidia, et al.
Publicado: (2019)

Assessing Non-Invasive Liver Function in Patients with Intestinal Failure Receiving Total Parenteral Nutrition—Results from the Prospective PNLiver Trial
por: Blüthner, Elisabeth, et al.
Publicado: (2020)

Long-Term Outcomes in Patients with Intestinal Failure Due to Short Bowel Syndrome and Intestinal Fistula
por: Kopczynska, Maja, et al.
Publicado: (2022)

Efficacy and Safety of Teduglutide in Infants and Children With Short Bowel Syndrome Dependent on Parenteral Support
por: Chiba, Masahiro, et al.
Publicado: (2023)

Palliative home parenteral nutrition in patients with ovarian cancer and malignant bowel obstruction: experiences of women and family caregivers
por: Sowerbutts, Anne Marie, et al.
Publicado: (2019)

Poor Prognostic Factors in Patients with Parenteral Nutrition-Dependent Pediatric Intestinal Failure
por: Choi, Shin Jie, et al.
Publicado: (2016)

Evolution of renal function in patients with severe intestinal failure on home parenteral nutrition
por: Chalencon, Elodie, et al.
Publicado: (2020)

Children with Intestinal Failure Maintain Their Renal Function on Long-Term Parenteral Nutrition
por: Guz Mark, Anat, et al.
Publicado: (2021)

A Digestive Cartridge Reduces Parenteral Nutrition Dependence and Increases Bowel Growth in a Piglet Short Bowel Model
por: Tsikis, Savas T., et al.
Publicado: (2023)

Untargeted Metabolomics Reveal Parenteral Nutrition-Associated Alterations in Pediatric Patients with Short Bowel Syndrome
por: Wang, Ying, et al.
Publicado: (2022)

GLP-1 and Intestinal Diseases
por: Hunt, Jenna Elizabeth, et al.
Publicado: (2021)

Effects of glepaglutide, a long‐acting glucagon‐like peptide‐2 analog, on intestinal morphology and perfusion in patients with short bowel syndrome: Findings from a randomized phase 2 trial
por: Naimi, Rahim M., et al.
Publicado: (2022)

Changes in Parenteral Nutrition Requirements and BMI in Patients with Parenteral Nutrition-Dependent Short Bowel Syndrome after Stopping Teduglutide—9 Years of Follow-Up
por: Zaczek, Zuzanna, et al.
Publicado: (2022)

Effects of Teduglutide on Diarrhea in Pediatric Patients with Short Bowel Syndrome-Associated Intestinal Failure
por: Fifi, Amanda, et al.
Publicado: (2023)

The risk for bloodstream infections is associated with increased parenteral caloric intake in patients receiving parenteral nutrition
por: Dissanaike, Sharmila, et al.
Publicado: (2007)

Cannot write session to /tmp/vufind_sessions/sess_s7fc6jcg4ogk7muainu2icn6ve