Cargando…
Short Communication: Restrictions in care following the COVID-19 pandemic severely impacted Machado-Joseph disease patients: a study in the Azores Islands, Portugal
This qualitative study describes how the restrictions imposed by the COVID-19 pandemic impacted on Machado-Joseph disease (MJD) patients and their care, in the island of São Miguel (the Azores, Portugal). In-person semi-structured interviews were conducted with 11 participants, including patients, f...
Autores principales: | Couto, Daniela, Sousa, Liliana, Sequeiros, Jorge, Lima, Manuela, Mendes, Álvaro |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9294769/ https://www.ncbi.nlm.nih.gov/pubmed/35851653 http://dx.doi.org/10.1007/s12687-022-00602-2 |
Ejemplares similares
-
Genetic counseling and presymptomatic testing programs for Machado-Joseph Disease: lessons from Brazil and Portugal
por: Schuler-Faccini, Lavínia, et al.
Publicado: (2014) -
Familial hypercholesterolemia: Molecular characterization of possible cases from the Azores Islands (Portugal)
por: Cymbron, Teresa, et al.
Publicado: (2014) -
Machado-Joseph Disease: from first descriptions to new perspectives
por: Bettencourt, Conceição, et al.
Publicado: (2011) -
Tissue-Specific Vulnerability to Apoptosis in Machado-Joseph Disease
por: Ferreira, Ana F., et al.
Publicado: (2023) -
Familial spontaneous pneumothorax and Machado–Joseph disease
por: Pelayo, Jerald, et al.
Publicado: (2020)