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Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life

A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the ‘lost generation,’ which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the exper...

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Detalles Bibliográficos
Autores principales: Atherton, Gray, Edisbury, Emma, Piovesan, Andrea, Cross, Liam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9296439/
https://www.ncbi.nlm.nih.gov/pubmed/34482523
http://dx.doi.org/10.1007/s10803-021-05235-x
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author Atherton, Gray
Edisbury, Emma
Piovesan, Andrea
Cross, Liam
author_facet Atherton, Gray
Edisbury, Emma
Piovesan, Andrea
Cross, Liam
author_sort Atherton, Gray
collection PubMed
description A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the ‘lost generation,’ which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05235-x.
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spelling pubmed-92964392022-07-21 Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life Atherton, Gray Edisbury, Emma Piovesan, Andrea Cross, Liam J Autism Dev Disord Original Paper A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the ‘lost generation,’ which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05235-x. Springer US 2021-09-04 2022 /pmc/articles/PMC9296439/ /pubmed/34482523 http://dx.doi.org/10.1007/s10803-021-05235-x Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Paper
Atherton, Gray
Edisbury, Emma
Piovesan, Andrea
Cross, Liam
Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
title Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
title_full Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
title_fullStr Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
title_full_unstemmed Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
title_short Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
title_sort autism through the ages: a mixed methods approach to understanding how age and age of diagnosis affect quality of life
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9296439/
https://www.ncbi.nlm.nih.gov/pubmed/34482523
http://dx.doi.org/10.1007/s10803-021-05235-x
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