Cargando…

Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark

OBJECTIVES: Proactive efforts that take language and cultural barriers into consideration may be needed to raise awareness of dementia and improve access to services in minority ethnic communities. The aim of this study was to assess the feasibility of a culturally tailored dementia information prog...

Descripción completa

Detalles Bibliográficos
Autores principales: Nielsen, T. Rune, Nielsen, Dorthe S., Waldemar, Gunhild
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9298896/
https://www.ncbi.nlm.nih.gov/pubmed/34762345
http://dx.doi.org/10.1002/gps.5656
_version_ 1784750818113617920
author Nielsen, T. Rune
Nielsen, Dorthe S.
Waldemar, Gunhild
author_facet Nielsen, T. Rune
Nielsen, Dorthe S.
Waldemar, Gunhild
author_sort Nielsen, T. Rune
collection PubMed
description OBJECTIVES: Proactive efforts that take language and cultural barriers into consideration may be needed to raise awareness of dementia and improve access to services in minority ethnic communities. The aim of this study was to assess the feasibility of a culturally tailored dementia information program and the immediate effects on participants' intention to seek help for memory problems, their knowledge and beliefs about dementia, and their knowledge about options for support. METHODS: A novel dementia information program, consisting of one 2‐h session, was developed through a collaborative research process with primary care dementia coordinators and multicultural link workers as co‐researchers. It provides basic knowledge about dementia to minority ethnic communities and can be delivered in a community setting by non‐specialists. RESULTS: Six information program sessions were conducted with a total of 110 participants; 65 Turkish, 19 Pakistani, 20 Arabic‐speaking, and 6 with another minority ethnic heritage. The program had a significant effect on participants' immediate knowledge and beliefs about dementia as measured with a quiz (z = −2.02, p = 0.04, d = 0.90). In a post‐program focus group meeting, facilitating multicultural link workers reported satisfaction with facilitator training, adopted recruitment strategies, and content and delivery of the information sessions and provided feedback on improving the program. CONCLUSIONS: The results provide support for the feasibility of the culturally tailored dementia information program. The program has the potential to improve knowledge and beliefs about dementia and options for formal support in minority ethnic communities and seems easily implemented in existing services, and at a low cost.
format Online
Article
Text
id pubmed-9298896
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-92988962022-07-21 Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark Nielsen, T. Rune Nielsen, Dorthe S. Waldemar, Gunhild Int J Geriatr Psychiatry Research Article OBJECTIVES: Proactive efforts that take language and cultural barriers into consideration may be needed to raise awareness of dementia and improve access to services in minority ethnic communities. The aim of this study was to assess the feasibility of a culturally tailored dementia information program and the immediate effects on participants' intention to seek help for memory problems, their knowledge and beliefs about dementia, and their knowledge about options for support. METHODS: A novel dementia information program, consisting of one 2‐h session, was developed through a collaborative research process with primary care dementia coordinators and multicultural link workers as co‐researchers. It provides basic knowledge about dementia to minority ethnic communities and can be delivered in a community setting by non‐specialists. RESULTS: Six information program sessions were conducted with a total of 110 participants; 65 Turkish, 19 Pakistani, 20 Arabic‐speaking, and 6 with another minority ethnic heritage. The program had a significant effect on participants' immediate knowledge and beliefs about dementia as measured with a quiz (z = −2.02, p = 0.04, d = 0.90). In a post‐program focus group meeting, facilitating multicultural link workers reported satisfaction with facilitator training, adopted recruitment strategies, and content and delivery of the information sessions and provided feedback on improving the program. CONCLUSIONS: The results provide support for the feasibility of the culturally tailored dementia information program. The program has the potential to improve knowledge and beliefs about dementia and options for formal support in minority ethnic communities and seems easily implemented in existing services, and at a low cost. John Wiley and Sons Inc. 2021-11-18 2022-01 /pmc/articles/PMC9298896/ /pubmed/34762345 http://dx.doi.org/10.1002/gps.5656 Text en © 2021 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Research Article
Nielsen, T. Rune
Nielsen, Dorthe S.
Waldemar, Gunhild
Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark
title Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark
title_full Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark
title_fullStr Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark
title_full_unstemmed Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark
title_short Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark
title_sort feasibility of a culturally tailored dementia information program for minority ethnic communities in denmark
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9298896/
https://www.ncbi.nlm.nih.gov/pubmed/34762345
http://dx.doi.org/10.1002/gps.5656
work_keys_str_mv AT nielsentrune feasibilityofaculturallytailoreddementiainformationprogramforminorityethniccommunitiesindenmark
AT nielsendorthes feasibilityofaculturallytailoreddementiainformationprogramforminorityethniccommunitiesindenmark
AT waldemargunhild feasibilityofaculturallytailoreddementiainformationprogramforminorityethniccommunitiesindenmark