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The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”

AIMS: Among people with diabetes using insulin, severe hypoglycaemia (SH) can be a life‐threatening complication, if untreated. The personal experiences during an SH event from the perspectives of people with diabetes and their caregivers are not well‐characterized. This study assessed the perceptio...

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Autores principales: Stuckey, Heather L., Desai, Urvi, King, Sarah B., Popadic, Lyuba, Levinson, William, Kirson, Noam Y., Hankosky, Emily R., Mitchell, Beth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9299593/
https://www.ncbi.nlm.nih.gov/pubmed/34797937
http://dx.doi.org/10.1111/dme.14745
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author Stuckey, Heather L.
Desai, Urvi
King, Sarah B.
Popadic, Lyuba
Levinson, William
Kirson, Noam Y.
Hankosky, Emily R.
Mitchell, Beth
author_facet Stuckey, Heather L.
Desai, Urvi
King, Sarah B.
Popadic, Lyuba
Levinson, William
Kirson, Noam Y.
Hankosky, Emily R.
Mitchell, Beth
author_sort Stuckey, Heather L.
collection PubMed
description AIMS: Among people with diabetes using insulin, severe hypoglycaemia (SH) can be a life‐threatening complication, if untreated. The personal experiences during an SH event from the perspectives of people with diabetes and their caregivers are not well‐characterized. This study assessed the perceptions of the event and the decision making processes of people with diabetes (T1D n = 36; T2D n = 24) and their caregivers during SH events. METHODS: In‐depth one‐on‐one telephone interviews were conducted with dyads of people with diabetes and caregivers in the United States (n = 120). An initial synopsis and inductive codebook schema were used to analyse the data with two independent coders (kappa = 0.87–0.89). Themes were developed from the codes, and codes were re‐mapped to the themes. RESULTS: Four themes were formed: (1) Caregivers scramble to do the right thing and support people with diabetes in treating SH; (2) Decision making capacity is impaired during an SH event, often a panicked time; (3) People learn to manage SH events through their own experiences and frequently make lifestyle changes to prevent and treat future events; and (4) Discussion with healthcare providers about SH, and particularly SH treatment, is limited. CONCLUSIONS: SH events are stressful and often evoke emotional reactions that can impair decision making. Thus, advance treatment planning of SH events needs to occur. Much of the knowledge about SH treatment derives from prior experience rather than healthcare provider guidance, suggesting a need for healthcare providers to initiate proactive discussions about SH treatment.
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spelling pubmed-92995932022-07-21 The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?” Stuckey, Heather L. Desai, Urvi King, Sarah B. Popadic, Lyuba Levinson, William Kirson, Noam Y. Hankosky, Emily R. Mitchell, Beth Diabet Med Research: Educational and Psychological Aspects AIMS: Among people with diabetes using insulin, severe hypoglycaemia (SH) can be a life‐threatening complication, if untreated. The personal experiences during an SH event from the perspectives of people with diabetes and their caregivers are not well‐characterized. This study assessed the perceptions of the event and the decision making processes of people with diabetes (T1D n = 36; T2D n = 24) and their caregivers during SH events. METHODS: In‐depth one‐on‐one telephone interviews were conducted with dyads of people with diabetes and caregivers in the United States (n = 120). An initial synopsis and inductive codebook schema were used to analyse the data with two independent coders (kappa = 0.87–0.89). Themes were developed from the codes, and codes were re‐mapped to the themes. RESULTS: Four themes were formed: (1) Caregivers scramble to do the right thing and support people with diabetes in treating SH; (2) Decision making capacity is impaired during an SH event, often a panicked time; (3) People learn to manage SH events through their own experiences and frequently make lifestyle changes to prevent and treat future events; and (4) Discussion with healthcare providers about SH, and particularly SH treatment, is limited. CONCLUSIONS: SH events are stressful and often evoke emotional reactions that can impair decision making. Thus, advance treatment planning of SH events needs to occur. Much of the knowledge about SH treatment derives from prior experience rather than healthcare provider guidance, suggesting a need for healthcare providers to initiate proactive discussions about SH treatment. John Wiley and Sons Inc. 2021-12-15 2022-04 /pmc/articles/PMC9299593/ /pubmed/34797937 http://dx.doi.org/10.1111/dme.14745 Text en © 2021 Eli Lilly and Company. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Research: Educational and Psychological Aspects
Stuckey, Heather L.
Desai, Urvi
King, Sarah B.
Popadic, Lyuba
Levinson, William
Kirson, Noam Y.
Hankosky, Emily R.
Mitchell, Beth
The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”
title The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”
title_full The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”
title_fullStr The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”
title_full_unstemmed The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”
title_short The experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “What am I going to do?”
title_sort experience of a severe hypoglycaemic event from the perspective of people with diabetes and their caregivers: “what am i going to do?”
topic Research: Educational and Psychological Aspects
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9299593/
https://www.ncbi.nlm.nih.gov/pubmed/34797937
http://dx.doi.org/10.1111/dme.14745
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