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In their own words: A narrative analysis of illness memoirs written by men with prostate cancer

By drawing on a narrative analysis of 11 autobiographical illness memoirs, this article investigates the complexities of what it means to live with prostate cancer over a period of time. Acknowledging how cancer disrupts everyday life, we focus on the day‐to‐day experiences and struggles that take p...

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Detalles Bibliográficos
Autores principales: van der Kamp, Jill, Betten, Afke Wieke, Krabbenborg, Lotte
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9300072/
https://www.ncbi.nlm.nih.gov/pubmed/34855224
http://dx.doi.org/10.1111/1467-9566.13412
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author van der Kamp, Jill
Betten, Afke Wieke
Krabbenborg, Lotte
author_facet van der Kamp, Jill
Betten, Afke Wieke
Krabbenborg, Lotte
author_sort van der Kamp, Jill
collection PubMed
description By drawing on a narrative analysis of 11 autobiographical illness memoirs, this article investigates the complexities of what it means to live with prostate cancer over a period of time. Acknowledging how cancer disrupts everyday life, we focus on the day‐to‐day experiences and struggles that take place inside and outside the hospital. By building on illustrative quotes from the memoirs, we discuss different facets of cancer as a lived experience. Our findings show that men reconstruct their identity in the memoirs in response to the disruptive nature of cancer by including various identities from previous times. They describe a relationship with their cancer that is fluid and fitful and often depends on place, time and circumstances. We also found that the ‘not knowing’ of prostate cancer creates uncertainty, which can take different forms, transcends time and is shaped through medical technologies, continual testing and disagreeing doctors. Prostate cancer is often seen as easily treatable, but our findings call for a different way of looking at its impact. We argue that memoirs, written by men themselves, make it palpable what it means to live with cancer. As such, illness memoirs offer a way to advance our sociological understanding of cancer‐as‐a‐lived experience.
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spelling pubmed-93000722022-07-21 In their own words: A narrative analysis of illness memoirs written by men with prostate cancer van der Kamp, Jill Betten, Afke Wieke Krabbenborg, Lotte Sociol Health Illn Original Articles By drawing on a narrative analysis of 11 autobiographical illness memoirs, this article investigates the complexities of what it means to live with prostate cancer over a period of time. Acknowledging how cancer disrupts everyday life, we focus on the day‐to‐day experiences and struggles that take place inside and outside the hospital. By building on illustrative quotes from the memoirs, we discuss different facets of cancer as a lived experience. Our findings show that men reconstruct their identity in the memoirs in response to the disruptive nature of cancer by including various identities from previous times. They describe a relationship with their cancer that is fluid and fitful and often depends on place, time and circumstances. We also found that the ‘not knowing’ of prostate cancer creates uncertainty, which can take different forms, transcends time and is shaped through medical technologies, continual testing and disagreeing doctors. Prostate cancer is often seen as easily treatable, but our findings call for a different way of looking at its impact. We argue that memoirs, written by men themselves, make it palpable what it means to live with cancer. As such, illness memoirs offer a way to advance our sociological understanding of cancer‐as‐a‐lived experience. John Wiley and Sons Inc. 2021-12-01 2022-01 /pmc/articles/PMC9300072/ /pubmed/34855224 http://dx.doi.org/10.1111/1467-9566.13412 Text en © 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL) https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
van der Kamp, Jill
Betten, Afke Wieke
Krabbenborg, Lotte
In their own words: A narrative analysis of illness memoirs written by men with prostate cancer
title In their own words: A narrative analysis of illness memoirs written by men with prostate cancer
title_full In their own words: A narrative analysis of illness memoirs written by men with prostate cancer
title_fullStr In their own words: A narrative analysis of illness memoirs written by men with prostate cancer
title_full_unstemmed In their own words: A narrative analysis of illness memoirs written by men with prostate cancer
title_short In their own words: A narrative analysis of illness memoirs written by men with prostate cancer
title_sort in their own words: a narrative analysis of illness memoirs written by men with prostate cancer
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9300072/
https://www.ncbi.nlm.nih.gov/pubmed/34855224
http://dx.doi.org/10.1111/1467-9566.13412
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