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How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations

Companions are individuals who support patients and attend health‐care appointments with them. Several studies characterised companions’ participation in broad terms, glossing over the details of how they time and design their actions, and how patients and health‐care practitioners (HCPs) respond to...

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Detalles Bibliográficos
Autores principales: Pino, Marco, Land, Victoria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9306617/
https://www.ncbi.nlm.nih.gov/pubmed/35157323
http://dx.doi.org/10.1111/1467-9566.13427
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author Pino, Marco
Land, Victoria
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Land, Victoria
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description Companions are individuals who support patients and attend health‐care appointments with them. Several studies characterised companions’ participation in broad terms, glossing over the details of how they time and design their actions, and how patients and health‐care practitioners (HCPs) respond to them. This article aims to examine these aspects in detail by using conversation analysis, focusing on actions whereby companions speak on patients’ behalf—mentioning delicate aspects of patients’ experience (specifically, by alluding to patients’ thoughts or feelings about dying). Some studies suggested that these actions undermine patients’ autonomy. By contrast, through examination of palliative care consultations in a UK hospice, we found that these interventions are warranted by contextual circumstances: they are either invited by patients or HCPs (through questions or gaze) or volunteered to help with the progression of an activity (e.g. when a patient does not answer an HCP’s question). Additionally, all parties collaborate in constructing these companion interventions as temporary departures from an otherwise prevailing normative orientation to patients’ right to speak for themselves. The study contributes to the sociology of health and illness by characterising how companions contribute to the ways in which participants coordinate their relative rights and responsibilities, and ultimately their relationships, within health‐care interactions.
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spelling pubmed-93066172022-07-28 How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations Pino, Marco Land, Victoria Sociol Health Illn Original Articles Companions are individuals who support patients and attend health‐care appointments with them. Several studies characterised companions’ participation in broad terms, glossing over the details of how they time and design their actions, and how patients and health‐care practitioners (HCPs) respond to them. This article aims to examine these aspects in detail by using conversation analysis, focusing on actions whereby companions speak on patients’ behalf—mentioning delicate aspects of patients’ experience (specifically, by alluding to patients’ thoughts or feelings about dying). Some studies suggested that these actions undermine patients’ autonomy. By contrast, through examination of palliative care consultations in a UK hospice, we found that these interventions are warranted by contextual circumstances: they are either invited by patients or HCPs (through questions or gaze) or volunteered to help with the progression of an activity (e.g. when a patient does not answer an HCP’s question). Additionally, all parties collaborate in constructing these companion interventions as temporary departures from an otherwise prevailing normative orientation to patients’ right to speak for themselves. The study contributes to the sociology of health and illness by characterising how companions contribute to the ways in which participants coordinate their relative rights and responsibilities, and ultimately their relationships, within health‐care interactions. John Wiley and Sons Inc. 2022-02-14 2022-02 /pmc/articles/PMC9306617/ /pubmed/35157323 http://dx.doi.org/10.1111/1467-9566.13427 Text en © 2022 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL) https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Pino, Marco
Land, Victoria
How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations
title How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations
title_full How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations
title_fullStr How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations
title_full_unstemmed How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations
title_short How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations
title_sort how companions speak on patients’ behalf without undermining their autonomy: findings from a conversation analytic study of palliative care consultations
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9306617/
https://www.ncbi.nlm.nih.gov/pubmed/35157323
http://dx.doi.org/10.1111/1467-9566.13427
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