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Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities

BACKGROUND: Early Positive Approaches to Support (E‐PAtS) is a co‐produced and co‐facilitated group programme that aims to provide early years support to family caregivers of children with Intellectual and Developmental Disabilities. METHOD: Thirty‐five caregivers who had attended E‐PAtS groups took...

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Autores principales: Gore, Nick, Bradshaw, Jill, Hastings, Richard, Sweeney, Joanne, Austin, Debbie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9311085/
https://www.ncbi.nlm.nih.gov/pubmed/35289031
http://dx.doi.org/10.1111/jar.12993
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author Gore, Nick
Bradshaw, Jill
Hastings, Richard
Sweeney, Joanne
Austin, Debbie
author_facet Gore, Nick
Bradshaw, Jill
Hastings, Richard
Sweeney, Joanne
Austin, Debbie
author_sort Gore, Nick
collection PubMed
description BACKGROUND: Early Positive Approaches to Support (E‐PAtS) is a co‐produced and co‐facilitated group programme that aims to provide early years support to family caregivers of children with Intellectual and Developmental Disabilities. METHOD: Thirty‐five caregivers who had attended E‐PAtS groups took part in individual interviews or focus groups. Caregiver experiences concerning attendance of E‐PAtS were explored, in relation to process variables and perceived outcomes. Interviews were thematically analysed. RESULTS: Three major themes were identified: our group, evolving emotions, and positive approaches. Being with and being supported by other families was very important to caregivers. Families reported increased confidence and greater realisation of the need for self‐care. Children were reported to show fewer behaviours that challenge and increases in adaptive skills. Findings corresponded to mechanisms and outcomes in the E‐PAtS logic model. CONCLUSION: E‐PAtS shows promise as one way families and children with Intellectual and Developmental Disabilities can access early years support.
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spelling pubmed-93110852022-07-29 Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities Gore, Nick Bradshaw, Jill Hastings, Richard Sweeney, Joanne Austin, Debbie J Appl Res Intellect Disabil Original Articles BACKGROUND: Early Positive Approaches to Support (E‐PAtS) is a co‐produced and co‐facilitated group programme that aims to provide early years support to family caregivers of children with Intellectual and Developmental Disabilities. METHOD: Thirty‐five caregivers who had attended E‐PAtS groups took part in individual interviews or focus groups. Caregiver experiences concerning attendance of E‐PAtS were explored, in relation to process variables and perceived outcomes. Interviews were thematically analysed. RESULTS: Three major themes were identified: our group, evolving emotions, and positive approaches. Being with and being supported by other families was very important to caregivers. Families reported increased confidence and greater realisation of the need for self‐care. Children were reported to show fewer behaviours that challenge and increases in adaptive skills. Findings corresponded to mechanisms and outcomes in the E‐PAtS logic model. CONCLUSION: E‐PAtS shows promise as one way families and children with Intellectual and Developmental Disabilities can access early years support. Blackwell Publishing Ltd 2022-03-14 2022-05 /pmc/articles/PMC9311085/ /pubmed/35289031 http://dx.doi.org/10.1111/jar.12993 Text en © 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Gore, Nick
Bradshaw, Jill
Hastings, Richard
Sweeney, Joanne
Austin, Debbie
Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
title Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
title_full Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
title_fullStr Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
title_full_unstemmed Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
title_short Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
title_sort early positive approaches to support (e‐pats): qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9311085/
https://www.ncbi.nlm.nih.gov/pubmed/35289031
http://dx.doi.org/10.1111/jar.12993
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