Quality of life in a large multinational haemophilia B cohort (The B‐Natural study) – Unmet needs remain

INTRODUCTION: The B‐Natural study is a multicentre, multinational, observational study of haemophilia B (HB) designed to increase understanding of clinical manifestations, treatment and quality of life (QoL). AIM: To characterise and compare QoL in HB across disease severity groups and individuals w...

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Detalles Bibliográficos
Autores principales: Berntorp, Erik, LeBeau, Petra, Ragni, Margaret V., Borhany, Munira, Abajas, Yasmina L., Tarantino, Michael D., Holstein, Katharina, Croteau, Stacy E., Liesner, Raina, Tarango, Cristina, Carvalho, Manuela, McGuinn, Catherine, Funding, Eva, Kempton, Christine L., Bidlingmaier, Christoph, Cohen, Alice, Oldenburg, Johannes, Kearney, Susan, Knoll, Christine, Kuriakose, Philip, Acharya, Suchitra, Reiss, Ulrike M., Kulkarni, Roshni, Witkop, Michelle, Lethagen, Stefan, Krouse, Rebecca, Shapiro, Amy D., Astermark, Jan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9314698/
https://www.ncbi.nlm.nih.gov/pubmed/35263495
http://dx.doi.org/10.1111/hae.14525

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