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Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso

The scientific literature on noma (Cancrum Oris) has clearly increased in recent decades, but there seems to have been limited analysis of issues around the psycho-social impacts of this disease. Even when these issues have been addressed, the focus has tended to be on patient experiences, whereas t...

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Autores principales: Kagoné, Moubassira, Mpinga, Emmanuel Kabengele, Dupuis, Marc, Moussa-Pham, Marie-Solène Adamou, Srour, Margaret Leila, Grema, Maïna Sani Malam, Zacharie, Ngoyi-Bukonda, Baratti-Mayer, Denise
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9316781/
https://www.ncbi.nlm.nih.gov/pubmed/35878152
http://dx.doi.org/10.3390/tropicalmed7070142
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author Kagoné, Moubassira
Mpinga, Emmanuel Kabengele
Dupuis, Marc
Moussa-Pham, Marie-Solène Adamou
Srour, Margaret Leila
Grema, Maïna Sani Malam
Zacharie, Ngoyi-Bukonda
Baratti-Mayer, Denise
author_facet Kagoné, Moubassira
Mpinga, Emmanuel Kabengele
Dupuis, Marc
Moussa-Pham, Marie-Solène Adamou
Srour, Margaret Leila
Grema, Maïna Sani Malam
Zacharie, Ngoyi-Bukonda
Baratti-Mayer, Denise
author_sort Kagoné, Moubassira
collection PubMed
description The scientific literature on noma (Cancrum Oris) has clearly increased in recent decades, but there seems to have been limited analysis of issues around the psycho-social impacts of this disease. Even when these issues have been addressed, the focus has tended to be on patient experiences, whereas the community dimension of the disease and the role of healthcare professionals and community leaders in mitigating these impacts remain largely unexplored. A study in the form of semi-directed interviews with 20 noma survivors and 10 healthcare professionals and community leaders was conducted between January and March 2021 in Burkina Faso with the aim of describing the experiences of noma survivors, generating knowledge about living with the burden of the disease and understanding the attitudes of community leaders towards the disease. The results reveal that noma is a disease that affects economically vulnerable populations and leads to extreme household poverty. As far as treatment is concerned, patients tend to turn to practitioners of both traditional and modern medicine. Within communities, noma survivors face discrimination and stigma. The study highlighted a lack of information and knowledge about noma. However, surgical operations lead to patient satisfaction and these remain one of the coping strategies used to tackle the stigma and discrimination. The recommendations set out in this article are aimed firstly at stepping up research into the psycho-social impacts of noma, and secondly at considering these impacts in regional programmes and national plans to combat the disease.
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spelling pubmed-93167812022-07-27 Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso Kagoné, Moubassira Mpinga, Emmanuel Kabengele Dupuis, Marc Moussa-Pham, Marie-Solène Adamou Srour, Margaret Leila Grema, Maïna Sani Malam Zacharie, Ngoyi-Bukonda Baratti-Mayer, Denise Trop Med Infect Dis Article The scientific literature on noma (Cancrum Oris) has clearly increased in recent decades, but there seems to have been limited analysis of issues around the psycho-social impacts of this disease. Even when these issues have been addressed, the focus has tended to be on patient experiences, whereas the community dimension of the disease and the role of healthcare professionals and community leaders in mitigating these impacts remain largely unexplored. A study in the form of semi-directed interviews with 20 noma survivors and 10 healthcare professionals and community leaders was conducted between January and March 2021 in Burkina Faso with the aim of describing the experiences of noma survivors, generating knowledge about living with the burden of the disease and understanding the attitudes of community leaders towards the disease. The results reveal that noma is a disease that affects economically vulnerable populations and leads to extreme household poverty. As far as treatment is concerned, patients tend to turn to practitioners of both traditional and modern medicine. Within communities, noma survivors face discrimination and stigma. The study highlighted a lack of information and knowledge about noma. However, surgical operations lead to patient satisfaction and these remain one of the coping strategies used to tackle the stigma and discrimination. The recommendations set out in this article are aimed firstly at stepping up research into the psycho-social impacts of noma, and secondly at considering these impacts in regional programmes and national plans to combat the disease. MDPI 2022-07-20 /pmc/articles/PMC9316781/ /pubmed/35878152 http://dx.doi.org/10.3390/tropicalmed7070142 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Kagoné, Moubassira
Mpinga, Emmanuel Kabengele
Dupuis, Marc
Moussa-Pham, Marie-Solène Adamou
Srour, Margaret Leila
Grema, Maïna Sani Malam
Zacharie, Ngoyi-Bukonda
Baratti-Mayer, Denise
Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso
title Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso
title_full Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso
title_fullStr Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso
title_full_unstemmed Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso
title_short Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso
title_sort noma: experiences of survivors, opinion leaders and healthcare professionals in burkina faso
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9316781/
https://www.ncbi.nlm.nih.gov/pubmed/35878152
http://dx.doi.org/10.3390/tropicalmed7070142
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