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The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study
Background: Due to ongoing disparity in the specialized care available to adolescents and young adults (AYAs) with cancer, this study aimed to understand the gaps and barriers to accessing care and preferences on types of solutions at a national Canadian level. Methods: A mixed-methods study involvi...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9321170/ https://www.ncbi.nlm.nih.gov/pubmed/35877266 http://dx.doi.org/10.3390/curroncol29070406 |
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author | Avery, Jonathan Wong, Emily Harris, Christine Chapman, Stacy Uppal, Serena Shanawaz, Shaayini Edwards, Annemarie Burnett, Laura Vora, Tushar Gupta, Abha A. |
author_facet | Avery, Jonathan Wong, Emily Harris, Christine Chapman, Stacy Uppal, Serena Shanawaz, Shaayini Edwards, Annemarie Burnett, Laura Vora, Tushar Gupta, Abha A. |
author_sort | Avery, Jonathan |
collection | PubMed |
description | Background: Due to ongoing disparity in the specialized care available to adolescents and young adults (AYAs) with cancer, this study aimed to understand the gaps and barriers to accessing care and preferences on types of solutions at a national Canadian level. Methods: A mixed-methods study involving an online survey and focus groups (FGs) was conducted among AYAs residing in different regions of Canada. Results: There were a total of 174 survey respondents, of whom the majority were between 30–39 years of age (n = 125, 71.8%). Of the 174 respondents, 36 (20.7%) participated in one of seven FGs. Triangulation of the results illustrated that AYAs are not appropriately informed about the long-term health risks of being treated for cancer and where/how to seek support. These results culminated into three themes: (1) the need for AYA relevant and timely information about health risks; by (a) producing health risk-related content with the AYA life stage in mind; (b) providing a guided “map” to help AYAs anticipate what they may experience, and (c) providing checklists to help AYAs navigate their experience; (2) need for tailored and timely supportive care including (a) establishing ongoing check-ins and (b) receiving navigation support, and (3) need for enhanced connections by creating (a) a space to gather, connect and seek mentorship and (b) a hub to access information. Conclusion: AYAs continue to lack sufficient support both during and following cancer and mechanisms are required to ensure longitudinal support is provided across jurisdictions and in all stages of the cancer journey. |
format | Online Article Text |
id | pubmed-9321170 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-93211702022-07-27 The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study Avery, Jonathan Wong, Emily Harris, Christine Chapman, Stacy Uppal, Serena Shanawaz, Shaayini Edwards, Annemarie Burnett, Laura Vora, Tushar Gupta, Abha A. Curr Oncol Article Background: Due to ongoing disparity in the specialized care available to adolescents and young adults (AYAs) with cancer, this study aimed to understand the gaps and barriers to accessing care and preferences on types of solutions at a national Canadian level. Methods: A mixed-methods study involving an online survey and focus groups (FGs) was conducted among AYAs residing in different regions of Canada. Results: There were a total of 174 survey respondents, of whom the majority were between 30–39 years of age (n = 125, 71.8%). Of the 174 respondents, 36 (20.7%) participated in one of seven FGs. Triangulation of the results illustrated that AYAs are not appropriately informed about the long-term health risks of being treated for cancer and where/how to seek support. These results culminated into three themes: (1) the need for AYA relevant and timely information about health risks; by (a) producing health risk-related content with the AYA life stage in mind; (b) providing a guided “map” to help AYAs anticipate what they may experience, and (c) providing checklists to help AYAs navigate their experience; (2) need for tailored and timely supportive care including (a) establishing ongoing check-ins and (b) receiving navigation support, and (3) need for enhanced connections by creating (a) a space to gather, connect and seek mentorship and (b) a hub to access information. Conclusion: AYAs continue to lack sufficient support both during and following cancer and mechanisms are required to ensure longitudinal support is provided across jurisdictions and in all stages of the cancer journey. MDPI 2022-07-20 /pmc/articles/PMC9321170/ /pubmed/35877266 http://dx.doi.org/10.3390/curroncol29070406 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Avery, Jonathan Wong, Emily Harris, Christine Chapman, Stacy Uppal, Serena Shanawaz, Shaayini Edwards, Annemarie Burnett, Laura Vora, Tushar Gupta, Abha A. The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study |
title | The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study |
title_full | The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study |
title_fullStr | The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study |
title_full_unstemmed | The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study |
title_short | The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study |
title_sort | transformation of adolescent and young adult oncological and supportive care in canada: a mixed methods study |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9321170/ https://www.ncbi.nlm.nih.gov/pubmed/35877266 http://dx.doi.org/10.3390/curroncol29070406 |
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