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Heritable connective tissue disorders in childhood: Decreased health‐related quality of life and mental health

The psychosocial consequences of growing up with Heritable Connective Tissue Disorders (HCTD) are largely unknown. We aimed to assess Health‐Related Quality of Life (HRQoL) and mental health of children and adolescents with HCTD. This observational multicenter study included 126 children, aged 4–18 ...

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Detalles Bibliográficos
Autores principales:	Warnink‐Kavelaars, Jessica, de Koning, Lisanne E., Rombaut, Lies, Menke, Leonie A., Alsem, Mattijs W., van Oers, Hedy A., Buizer, Annemieke I., Engelbert, Raoul H. H., Oosterlaan, Jaap
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley & Sons, Inc. 2022
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9321696/ https://www.ncbi.nlm.nih.gov/pubmed/35393672 http://dx.doi.org/10.1002/ajmg.a.62750

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