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Quality of Online Information on Multiple Myeloma Available for Laypersons

Online information can increase patients’ competence and engagement. However, there are concerns regarding invalid information. Overall, 300 websites and 50 YouTube videos on multiple myeloma (MM) were evaluated. The websites did not differ between the search engines or search ranks. The median time...

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Autores principales: Staemmler, Henrike, Sauer, Sandra, Kreutzer, Emma Pauline, Brandt, Juliane, Jordan, Karin, Kreuter, Michael, Kriegsmann, Mark, Goldschmidt, Hartmut, Müller-Tidow, Carsten, Egerer, Gerlinde, Kriegsmann, Katharina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324394/
https://www.ncbi.nlm.nih.gov/pubmed/35877218
http://dx.doi.org/10.3390/curroncol29070358
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author Staemmler, Henrike
Sauer, Sandra
Kreutzer, Emma Pauline
Brandt, Juliane
Jordan, Karin
Kreuter, Michael
Kriegsmann, Mark
Goldschmidt, Hartmut
Müller-Tidow, Carsten
Egerer, Gerlinde
Kriegsmann, Katharina
author_facet Staemmler, Henrike
Sauer, Sandra
Kreutzer, Emma Pauline
Brandt, Juliane
Jordan, Karin
Kreuter, Michael
Kriegsmann, Mark
Goldschmidt, Hartmut
Müller-Tidow, Carsten
Egerer, Gerlinde
Kriegsmann, Katharina
author_sort Staemmler, Henrike
collection PubMed
description Online information can increase patients’ competence and engagement. However, there are concerns regarding invalid information. Overall, 300 websites and 50 YouTube videos on multiple myeloma (MM) were evaluated. The websites did not differ between the search engines or search ranks. The median time since the last update was 9 months. The 63 unique websites showed a poor general quality (median JAMA score 2 of 4, only 18% with a valid HON certificate). The patient- (user-) focused quality was medium to poor (median sum DISCERN score 41 out of 80 points). The overall reading level was difficult requiring at least a 12th US school grade. The content level was low (median 24 out of 73 points). Sixteen percent contained misleading/wrong facts. Websites provided by foundation/advocacies showed a significantly higher general and patient- (user-) focused quality. For videos, the median time since upload was 18 months. Judged by the HON foundation score ~80% of videos showed a medium general quality. The patient- (user-) focused quality was medium to poor (median sum DISCERN score 43 points). The content level was very low (median 8 points). MM relevant websites and videos showed a medium to low general, patient- (user-) focused and content quality. Therefore, incorporation of quality indices and regular review is warranted.
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spelling pubmed-93243942022-07-27 Quality of Online Information on Multiple Myeloma Available for Laypersons Staemmler, Henrike Sauer, Sandra Kreutzer, Emma Pauline Brandt, Juliane Jordan, Karin Kreuter, Michael Kriegsmann, Mark Goldschmidt, Hartmut Müller-Tidow, Carsten Egerer, Gerlinde Kriegsmann, Katharina Curr Oncol Article Online information can increase patients’ competence and engagement. However, there are concerns regarding invalid information. Overall, 300 websites and 50 YouTube videos on multiple myeloma (MM) were evaluated. The websites did not differ between the search engines or search ranks. The median time since the last update was 9 months. The 63 unique websites showed a poor general quality (median JAMA score 2 of 4, only 18% with a valid HON certificate). The patient- (user-) focused quality was medium to poor (median sum DISCERN score 41 out of 80 points). The overall reading level was difficult requiring at least a 12th US school grade. The content level was low (median 24 out of 73 points). Sixteen percent contained misleading/wrong facts. Websites provided by foundation/advocacies showed a significantly higher general and patient- (user-) focused quality. For videos, the median time since upload was 18 months. Judged by the HON foundation score ~80% of videos showed a medium general quality. The patient- (user-) focused quality was medium to poor (median sum DISCERN score 43 points). The content level was very low (median 8 points). MM relevant websites and videos showed a medium to low general, patient- (user-) focused and content quality. Therefore, incorporation of quality indices and regular review is warranted. MDPI 2022-06-27 /pmc/articles/PMC9324394/ /pubmed/35877218 http://dx.doi.org/10.3390/curroncol29070358 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Staemmler, Henrike
Sauer, Sandra
Kreutzer, Emma Pauline
Brandt, Juliane
Jordan, Karin
Kreuter, Michael
Kriegsmann, Mark
Goldschmidt, Hartmut
Müller-Tidow, Carsten
Egerer, Gerlinde
Kriegsmann, Katharina
Quality of Online Information on Multiple Myeloma Available for Laypersons
title Quality of Online Information on Multiple Myeloma Available for Laypersons
title_full Quality of Online Information on Multiple Myeloma Available for Laypersons
title_fullStr Quality of Online Information on Multiple Myeloma Available for Laypersons
title_full_unstemmed Quality of Online Information on Multiple Myeloma Available for Laypersons
title_short Quality of Online Information on Multiple Myeloma Available for Laypersons
title_sort quality of online information on multiple myeloma available for laypersons
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324394/
https://www.ncbi.nlm.nih.gov/pubmed/35877218
http://dx.doi.org/10.3390/curroncol29070358
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