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Quality of Online Information on Multiple Myeloma Available for Laypersons
Online information can increase patients’ competence and engagement. However, there are concerns regarding invalid information. Overall, 300 websites and 50 YouTube videos on multiple myeloma (MM) were evaluated. The websites did not differ between the search engines or search ranks. The median time...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324394/ https://www.ncbi.nlm.nih.gov/pubmed/35877218 http://dx.doi.org/10.3390/curroncol29070358 |
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author | Staemmler, Henrike Sauer, Sandra Kreutzer, Emma Pauline Brandt, Juliane Jordan, Karin Kreuter, Michael Kriegsmann, Mark Goldschmidt, Hartmut Müller-Tidow, Carsten Egerer, Gerlinde Kriegsmann, Katharina |
author_facet | Staemmler, Henrike Sauer, Sandra Kreutzer, Emma Pauline Brandt, Juliane Jordan, Karin Kreuter, Michael Kriegsmann, Mark Goldschmidt, Hartmut Müller-Tidow, Carsten Egerer, Gerlinde Kriegsmann, Katharina |
author_sort | Staemmler, Henrike |
collection | PubMed |
description | Online information can increase patients’ competence and engagement. However, there are concerns regarding invalid information. Overall, 300 websites and 50 YouTube videos on multiple myeloma (MM) were evaluated. The websites did not differ between the search engines or search ranks. The median time since the last update was 9 months. The 63 unique websites showed a poor general quality (median JAMA score 2 of 4, only 18% with a valid HON certificate). The patient- (user-) focused quality was medium to poor (median sum DISCERN score 41 out of 80 points). The overall reading level was difficult requiring at least a 12th US school grade. The content level was low (median 24 out of 73 points). Sixteen percent contained misleading/wrong facts. Websites provided by foundation/advocacies showed a significantly higher general and patient- (user-) focused quality. For videos, the median time since upload was 18 months. Judged by the HON foundation score ~80% of videos showed a medium general quality. The patient- (user-) focused quality was medium to poor (median sum DISCERN score 43 points). The content level was very low (median 8 points). MM relevant websites and videos showed a medium to low general, patient- (user-) focused and content quality. Therefore, incorporation of quality indices and regular review is warranted. |
format | Online Article Text |
id | pubmed-9324394 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-93243942022-07-27 Quality of Online Information on Multiple Myeloma Available for Laypersons Staemmler, Henrike Sauer, Sandra Kreutzer, Emma Pauline Brandt, Juliane Jordan, Karin Kreuter, Michael Kriegsmann, Mark Goldschmidt, Hartmut Müller-Tidow, Carsten Egerer, Gerlinde Kriegsmann, Katharina Curr Oncol Article Online information can increase patients’ competence and engagement. However, there are concerns regarding invalid information. Overall, 300 websites and 50 YouTube videos on multiple myeloma (MM) were evaluated. The websites did not differ between the search engines or search ranks. The median time since the last update was 9 months. The 63 unique websites showed a poor general quality (median JAMA score 2 of 4, only 18% with a valid HON certificate). The patient- (user-) focused quality was medium to poor (median sum DISCERN score 41 out of 80 points). The overall reading level was difficult requiring at least a 12th US school grade. The content level was low (median 24 out of 73 points). Sixteen percent contained misleading/wrong facts. Websites provided by foundation/advocacies showed a significantly higher general and patient- (user-) focused quality. For videos, the median time since upload was 18 months. Judged by the HON foundation score ~80% of videos showed a medium general quality. The patient- (user-) focused quality was medium to poor (median sum DISCERN score 43 points). The content level was very low (median 8 points). MM relevant websites and videos showed a medium to low general, patient- (user-) focused and content quality. Therefore, incorporation of quality indices and regular review is warranted. MDPI 2022-06-27 /pmc/articles/PMC9324394/ /pubmed/35877218 http://dx.doi.org/10.3390/curroncol29070358 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Staemmler, Henrike Sauer, Sandra Kreutzer, Emma Pauline Brandt, Juliane Jordan, Karin Kreuter, Michael Kriegsmann, Mark Goldschmidt, Hartmut Müller-Tidow, Carsten Egerer, Gerlinde Kriegsmann, Katharina Quality of Online Information on Multiple Myeloma Available for Laypersons |
title | Quality of Online Information on Multiple Myeloma Available for Laypersons |
title_full | Quality of Online Information on Multiple Myeloma Available for Laypersons |
title_fullStr | Quality of Online Information on Multiple Myeloma Available for Laypersons |
title_full_unstemmed | Quality of Online Information on Multiple Myeloma Available for Laypersons |
title_short | Quality of Online Information on Multiple Myeloma Available for Laypersons |
title_sort | quality of online information on multiple myeloma available for laypersons |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324394/ https://www.ncbi.nlm.nih.gov/pubmed/35877218 http://dx.doi.org/10.3390/curroncol29070358 |
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