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Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

BACKGROUND: Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care burden, loneliness, and social isolation among caregivers of people with endurin...

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Autores principales: Grycuk, Emilia, Chen, Yaohua, Almirall‐Sanchez, Arianna, Higgins, Dawn, Galvin, Miriam, Kane, Joseph, Kinchin, Irina, Lawlor, Brian, Rogan, Carol, Russell, Gregor, O'Sullivan, Roger, Leroi, Iracema
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324775/
https://www.ncbi.nlm.nih.gov/pubmed/35574817
http://dx.doi.org/10.1002/gps.5734
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author Grycuk, Emilia
Chen, Yaohua
Almirall‐Sanchez, Arianna
Higgins, Dawn
Galvin, Miriam
Kane, Joseph
Kinchin, Irina
Lawlor, Brian
Rogan, Carol
Russell, Gregor
O'Sullivan, Roger
Leroi, Iracema
author_facet Grycuk, Emilia
Chen, Yaohua
Almirall‐Sanchez, Arianna
Higgins, Dawn
Galvin, Miriam
Kane, Joseph
Kinchin, Irina
Lawlor, Brian
Rogan, Carol
Russell, Gregor
O'Sullivan, Roger
Leroi, Iracema
author_sort Grycuk, Emilia
collection PubMed
description BACKGROUND: Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care burden, loneliness, and social isolation among caregivers of people with enduring physical and brain health conditions in English‐speaking regions worldwide, by investigating outcomes before and during the COVID‐19 pandemic. METHODS: A cross‐sectional anonymous online survey data from 2287 English‐speaking caregivers of people with long term health conditions from four English‐speaking regions (UK, Ireland, USA, New Zealand) included measures of care burden, loneliness, and social isolation, reported before and during the COVID‐19 pandemic. Analyses were descriptive, followed by an ordinal regression model for predictors of burden. RESULTS: Compared to pre‐pandemic levels, all caregivers experienced a significant increase in burden, loneliness, and isolation. Caregivers of people with both brain health and physical conditions were the most burdened and had the highest levels of loneliness and isolation compared to caregivers of people with either a brain health or physical condition only. The increase in care burden among caregivers of people with brain health challenges was associated with caregiver's gender, moderate and severe emotional loneliness, magnitude and frequency of isolation during the pandemic, and care circumstances (cohabitation with the care recipient, restrictions on the ability to provide care). CONCLUSIONS: Health and social care interventions should target caregivers' care circumstances and psychological outcomes, particularly in women, accounting for the significant additional burden of care, loneliness, and isolation resulting from pandemic‐related restrictions.
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spelling pubmed-93247752022-07-30 Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic Grycuk, Emilia Chen, Yaohua Almirall‐Sanchez, Arianna Higgins, Dawn Galvin, Miriam Kane, Joseph Kinchin, Irina Lawlor, Brian Rogan, Carol Russell, Gregor O'Sullivan, Roger Leroi, Iracema Int J Geriatr Psychiatry Research Article BACKGROUND: Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care burden, loneliness, and social isolation among caregivers of people with enduring physical and brain health conditions in English‐speaking regions worldwide, by investigating outcomes before and during the COVID‐19 pandemic. METHODS: A cross‐sectional anonymous online survey data from 2287 English‐speaking caregivers of people with long term health conditions from four English‐speaking regions (UK, Ireland, USA, New Zealand) included measures of care burden, loneliness, and social isolation, reported before and during the COVID‐19 pandemic. Analyses were descriptive, followed by an ordinal regression model for predictors of burden. RESULTS: Compared to pre‐pandemic levels, all caregivers experienced a significant increase in burden, loneliness, and isolation. Caregivers of people with both brain health and physical conditions were the most burdened and had the highest levels of loneliness and isolation compared to caregivers of people with either a brain health or physical condition only. The increase in care burden among caregivers of people with brain health challenges was associated with caregiver's gender, moderate and severe emotional loneliness, magnitude and frequency of isolation during the pandemic, and care circumstances (cohabitation with the care recipient, restrictions on the ability to provide care). CONCLUSIONS: Health and social care interventions should target caregivers' care circumstances and psychological outcomes, particularly in women, accounting for the significant additional burden of care, loneliness, and isolation resulting from pandemic‐related restrictions. John Wiley and Sons Inc. 2022-05-16 2022-06 /pmc/articles/PMC9324775/ /pubmed/35574817 http://dx.doi.org/10.1002/gps.5734 Text en © 2022 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Research Article
Grycuk, Emilia
Chen, Yaohua
Almirall‐Sanchez, Arianna
Higgins, Dawn
Galvin, Miriam
Kane, Joseph
Kinchin, Irina
Lawlor, Brian
Rogan, Carol
Russell, Gregor
O'Sullivan, Roger
Leroi, Iracema
Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic
title Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic
title_full Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic
title_fullStr Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic
title_full_unstemmed Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic
title_short Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic
title_sort care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in english‐speaking regions: before and during the covid‐19 pandemic
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324775/
https://www.ncbi.nlm.nih.gov/pubmed/35574817
http://dx.doi.org/10.1002/gps.5734
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