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Clinical and humanistic burden among pediatric patients with neurofibromatosis type 1 and plexiform neurofibroma in the USA

PURPOSE: To assess clinical and humanistic burden among pediatric patients with neurofibromatosis type 1 (NF1) and plexiform neurofibroma (PN) in the USA. METHODS: NF1-PN patients aged 8–18 years (treatment-naïve or ≤ 1 month of selumetinib treatment) and their caregivers and caregivers of similar p...

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Detalles Bibliográficos
Autores principales: Yang, Xiaoqin, Yoo, Hyun Kyoo, Amin, Suvina, Cheng, Wendy Y., Sundaresan, Sanjana, Zhang, Lujia, Duh, Mei Sheng
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9325812/
https://www.ncbi.nlm.nih.gov/pubmed/35579709
http://dx.doi.org/10.1007/s00381-022-05513-8