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Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument

Hereditary hemorrhagic telangiectasia (HHT) is characterized by arteriovenous malformations and telangiectasia, with primary clinical manifestations of epistaxis and gastrointestinal bleeding and resultant anemia. HHT negatively affects health-related quality of life (HR-QoL); however, existing tool...

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Detalles Bibliográficos
Autores principales:	Kasthuri, Raj S., Chaturvedi, Shruti, Thomas, Sonia, Vandergrift, Nathan, Bann, Carla, Schaefer, Nicole, Clancy, Marianne S., Pyeritz, Reed, McCrae, Keith R.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	American Society of Hematology 2022
Materias:	Clinical Trials and Observations
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9327531/ https://www.ncbi.nlm.nih.gov/pubmed/35877137 http://dx.doi.org/10.1182/bloodadvances.2022007748

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