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A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma

BACKGROUND: Coping can moderate the relationship between trauma exposure and trauma symptoms. There are many conceptualisations of coping in the general population, but limited research has considered how autistic individuals cope, despite their above-average rates of traumatic exposure. OBJECTIVES:...

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Autores principales: Ng-Cordell, Elise, Rai, Anika, Peracha, Hira, Garfield, Tamara, Lankenau, Stephen E., Robins, Diana L., Berkowitz, Steven J., Newschaffer, Craig, Kerns, Connor M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9329569/
https://www.ncbi.nlm.nih.gov/pubmed/35911211
http://dx.doi.org/10.3389/fpsyt.2022.825008
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author Ng-Cordell, Elise
Rai, Anika
Peracha, Hira
Garfield, Tamara
Lankenau, Stephen E.
Robins, Diana L.
Berkowitz, Steven J.
Newschaffer, Craig
Kerns, Connor M.
author_facet Ng-Cordell, Elise
Rai, Anika
Peracha, Hira
Garfield, Tamara
Lankenau, Stephen E.
Robins, Diana L.
Berkowitz, Steven J.
Newschaffer, Craig
Kerns, Connor M.
author_sort Ng-Cordell, Elise
collection PubMed
description BACKGROUND: Coping can moderate the relationship between trauma exposure and trauma symptoms. There are many conceptualisations of coping in the general population, but limited research has considered how autistic individuals cope, despite their above-average rates of traumatic exposure. OBJECTIVES: To describe the range of coping strategies autistic individuals use following traumatic events. METHODS: Fourteen autistic adults and 15 caregivers of autistic individuals, recruited via stratified purposive sampling, completed semi-structured interviews. Participants were asked to describe how they/their child attempted to cope with events they perceived as traumatic. Using an existing theoretical framework and reflexive thematic analysis, coping strategies were identified, described, and organized into themes. RESULTS: Coping strategies used by autistic individuals could be organized into 3 main themes: (1) Engaging with Trauma, (2) Disengaging from Trauma, and (3) Self-Regulatory Coping. After the three main themes were developed, a fourth integrative theme, Diagnostic Overshadowing, was created to capture participants' reports of the overlap or confusion between coping and autism-related behaviors. CONCLUSIONS: Autistic individuals use many strategies to cope with trauma, many of which are traditionally recognized as coping, but some of which may be less easily recognized given their overlap with autism-related behaviors. Findings highlight considerations for conceptualizing coping in autism, including factors influencing how individuals cope with trauma, and how aspects of autism may shape or overlap with coping behavior. Research building on these findings may inform a more nuanced understanding of how autistic people respond to adversity, and how to support coping strategies that promote recovery from trauma.
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spelling pubmed-93295692022-07-29 A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma Ng-Cordell, Elise Rai, Anika Peracha, Hira Garfield, Tamara Lankenau, Stephen E. Robins, Diana L. Berkowitz, Steven J. Newschaffer, Craig Kerns, Connor M. Front Psychiatry Psychiatry BACKGROUND: Coping can moderate the relationship between trauma exposure and trauma symptoms. There are many conceptualisations of coping in the general population, but limited research has considered how autistic individuals cope, despite their above-average rates of traumatic exposure. OBJECTIVES: To describe the range of coping strategies autistic individuals use following traumatic events. METHODS: Fourteen autistic adults and 15 caregivers of autistic individuals, recruited via stratified purposive sampling, completed semi-structured interviews. Participants were asked to describe how they/their child attempted to cope with events they perceived as traumatic. Using an existing theoretical framework and reflexive thematic analysis, coping strategies were identified, described, and organized into themes. RESULTS: Coping strategies used by autistic individuals could be organized into 3 main themes: (1) Engaging with Trauma, (2) Disengaging from Trauma, and (3) Self-Regulatory Coping. After the three main themes were developed, a fourth integrative theme, Diagnostic Overshadowing, was created to capture participants' reports of the overlap or confusion between coping and autism-related behaviors. CONCLUSIONS: Autistic individuals use many strategies to cope with trauma, many of which are traditionally recognized as coping, but some of which may be less easily recognized given their overlap with autism-related behaviors. Findings highlight considerations for conceptualizing coping in autism, including factors influencing how individuals cope with trauma, and how aspects of autism may shape or overlap with coping behavior. Research building on these findings may inform a more nuanced understanding of how autistic people respond to adversity, and how to support coping strategies that promote recovery from trauma. Frontiers Media S.A. 2022-07-14 /pmc/articles/PMC9329569/ /pubmed/35911211 http://dx.doi.org/10.3389/fpsyt.2022.825008 Text en Copyright © 2022 Ng-Cordell, Rai, Peracha, Garfield, Lankenau, Robins, Berkowitz, Newschaffer and Kerns. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Psychiatry
Ng-Cordell, Elise
Rai, Anika
Peracha, Hira
Garfield, Tamara
Lankenau, Stephen E.
Robins, Diana L.
Berkowitz, Steven J.
Newschaffer, Craig
Kerns, Connor M.
A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma
title A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma
title_full A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma
title_fullStr A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma
title_full_unstemmed A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma
title_short A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma
title_sort qualitative study of self and caregiver perspectives on how autistic individuals cope with trauma
topic Psychiatry
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9329569/
https://www.ncbi.nlm.nih.gov/pubmed/35911211
http://dx.doi.org/10.3389/fpsyt.2022.825008
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