Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome

OBJECTIVE: The present paper describes the design, development, and implementation of the AutoInflammatory Disease Alliance (AIDA) International Registry specifically dedicated to patients with Schnitzler's syndrome. METHODS: This is a clinical physician-driven, population- and electronic-based...

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Detalles Bibliográficos
Autores principales: Sota, Jurgen, Vitale, Antonio, Więsik-Szewczyk, Ewa, Frassi, Micol, Lopalco, Giuseppe, Emmi, Giacomo, Govoni, Marcello, de Paulis, Amato, Marino, Achille, Gidaro, Antonio, Monti, Sara, Opris-Belinski, Daniela, Pereira, Rosa Maria R., Jahnz-Rózyk, Karina, Gaggiano, Carla, Crisafulli, Francesca, Iannone, Florenzo, Mattioli, Irene, Ruffilli, Francesca, Mormile, Ilaria, Rybak, Katarzyna, Caggiano, Valeria, Airò, Paolo, Tufan, Abdurrahman, Gentileschi, Stefano, Ragab, Gaafar, Almaghlouth, Ibrahim A., Aboul-Fotouh Khalil, Adham, Cattalini, Marco, La Torre, Francesco, Tarsia, Maria, Giardini, Henrique A. Mayrink, Ali Saad, Moustafa, Bocchia, Monica, Caroni, Federico, Giani, Teresa, Cinotti, Elisa, Ruscitti, Piero, Rubegni, Pietro, Dagostin, Marília A., Frediani, Bruno, Guler, Aslihan Avanoglu, Della Casa, Francesca, Maggio, Maria Cristina, Recke, Andreas, von Bubnoff, Dagmar, Krause, Karoline, Balistreri, Alberto, Fabiani, Claudia, Rigante, Donato, Cantarini, Luca
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Medicine
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9339622/
https://www.ncbi.nlm.nih.gov/pubmed/35924038
http://dx.doi.org/10.3389/fmed.2022.931189

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