Cargando…
Contextual Exceptionalism After Death: An Information Ethics Approach to Post-Mortem Privacy in Health Data Research
In this article, we use the theory of Information Ethics to argue that deceased people have a prima facie moral right to privacy in the context of health data research, and that this should be reflected in regulation and guidelines. After death, people are no longer biological subjects but continue...
Autores principales: | Bak, Marieke A. R., Willems, Dick L. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Netherlands
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9349167/ https://www.ncbi.nlm.nih.gov/pubmed/35922650 http://dx.doi.org/10.1007/s11948-022-00387-0 |
Ejemplares similares
-
Role-Playing Computer Ethics: Designing and Evaluating the Privacy by Design (PbD) Simulation
por: Shilton, Katie, et al.
Publicado: (2020) -
Contextualizing Security Innovation: Responsible Research and Innovation at the Smart Border?
por: Klimburg-Witjes, Nina, et al.
Publicado: (2021) -
Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review
por: Bak, Marieke A. R., et al.
Publicado: (2019) -
Research Ethical Norms, Guidance and the Internet
por: Salwén, Håkan
Publicado: (2021) -
Research Ethics in the Age of Digital Platforms
por: Molina, José Luis, et al.
Publicado: (2023)