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Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India

A growing number of organisations, including medical associations, recommend that research subjects should be given the option of being informed about the general outcome and results of the study. We recently completed a study involving nine serosurveys from 2018 to 2020 in five districts of India a...

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Autores principales: Salvi, Neha, Itta, Krishna Chaaithanya, Lachyan, Abhishek, Hasan, Alvira Z., Prosperi, Christine, Kumar, Muthusamy Santhosh, Wesley Vivian Thangaraj, Jeromie, Kaduskar, Ojas, Bhatt, Vaishali, Sapkal, Gajanan N., Murhekar, Manoj, Gupta, Nivedita, Mehendale, Sanjay, Hayford, Kyla, Moss, William J., Chauhan, Sanjay, Kulkarni, Ragini
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9352079/
https://www.ncbi.nlm.nih.gov/pubmed/35925959
http://dx.doi.org/10.1371/journal.pone.0271920
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author Salvi, Neha
Itta, Krishna Chaaithanya
Lachyan, Abhishek
Hasan, Alvira Z.
Prosperi, Christine
Kumar, Muthusamy Santhosh
Wesley Vivian Thangaraj, Jeromie
Kaduskar, Ojas
Bhatt, Vaishali
Sapkal, Gajanan N.
Murhekar, Manoj
Gupta, Nivedita
Mehendale, Sanjay
Hayford, Kyla
Moss, William J.
Chauhan, Sanjay
Kulkarni, Ragini
author_facet Salvi, Neha
Itta, Krishna Chaaithanya
Lachyan, Abhishek
Hasan, Alvira Z.
Prosperi, Christine
Kumar, Muthusamy Santhosh
Wesley Vivian Thangaraj, Jeromie
Kaduskar, Ojas
Bhatt, Vaishali
Sapkal, Gajanan N.
Murhekar, Manoj
Gupta, Nivedita
Mehendale, Sanjay
Hayford, Kyla
Moss, William J.
Chauhan, Sanjay
Kulkarni, Ragini
author_sort Salvi, Neha
collection PubMed
description A growing number of organisations, including medical associations, recommend that research subjects should be given the option of being informed about the general outcome and results of the study. We recently completed a study involving nine serosurveys from 2018 to 2020 in five districts of India among three age groups (children 9 months to < 5 years; 5 to < 15 years of age, and women 15 to < 50 years of age before and after the measles and rubella (MR) vaccination campaigns). In Palghar district of Maharashtra all individuals in 30 selected clusters were enumerated, and 13 individuals per age group were randomly sampled. We established the procedures to return the results to the respondents for each stage of the survey. Of the 1,166 individuals selected for the measles and rubella serosurvey, 971 (83%) agreed to participate and were enrolled. Participants were informed that they will only be contacted if they test seronegative for measles and/or rubella antibodies. Overall, 140 individuals enrolled in the survey tested seronegative for IgG antibodies to measles and/or rubella viruses; were provided the reports and informed to seek medical advice. Upon follow up by phone, 10% (14) of the 140 participants reported to have been vaccinated. In this paper we discuss the procedures, experiences and considerations in returning results to participants in a community-based measles and rubella serosurvey. Although the lessons learned are specific to post measles-rubella vaccine campaign serosurvey in India, they might be helpful to those contemplating sharing results to participants of large scale survey settings.
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spelling pubmed-93520792022-08-05 Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India Salvi, Neha Itta, Krishna Chaaithanya Lachyan, Abhishek Hasan, Alvira Z. Prosperi, Christine Kumar, Muthusamy Santhosh Wesley Vivian Thangaraj, Jeromie Kaduskar, Ojas Bhatt, Vaishali Sapkal, Gajanan N. Murhekar, Manoj Gupta, Nivedita Mehendale, Sanjay Hayford, Kyla Moss, William J. Chauhan, Sanjay Kulkarni, Ragini PLoS One Research Article A growing number of organisations, including medical associations, recommend that research subjects should be given the option of being informed about the general outcome and results of the study. We recently completed a study involving nine serosurveys from 2018 to 2020 in five districts of India among three age groups (children 9 months to < 5 years; 5 to < 15 years of age, and women 15 to < 50 years of age before and after the measles and rubella (MR) vaccination campaigns). In Palghar district of Maharashtra all individuals in 30 selected clusters were enumerated, and 13 individuals per age group were randomly sampled. We established the procedures to return the results to the respondents for each stage of the survey. Of the 1,166 individuals selected for the measles and rubella serosurvey, 971 (83%) agreed to participate and were enrolled. Participants were informed that they will only be contacted if they test seronegative for measles and/or rubella antibodies. Overall, 140 individuals enrolled in the survey tested seronegative for IgG antibodies to measles and/or rubella viruses; were provided the reports and informed to seek medical advice. Upon follow up by phone, 10% (14) of the 140 participants reported to have been vaccinated. In this paper we discuss the procedures, experiences and considerations in returning results to participants in a community-based measles and rubella serosurvey. Although the lessons learned are specific to post measles-rubella vaccine campaign serosurvey in India, they might be helpful to those contemplating sharing results to participants of large scale survey settings. Public Library of Science 2022-08-04 /pmc/articles/PMC9352079/ /pubmed/35925959 http://dx.doi.org/10.1371/journal.pone.0271920 Text en © 2022 Salvi et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Salvi, Neha
Itta, Krishna Chaaithanya
Lachyan, Abhishek
Hasan, Alvira Z.
Prosperi, Christine
Kumar, Muthusamy Santhosh
Wesley Vivian Thangaraj, Jeromie
Kaduskar, Ojas
Bhatt, Vaishali
Sapkal, Gajanan N.
Murhekar, Manoj
Gupta, Nivedita
Mehendale, Sanjay
Hayford, Kyla
Moss, William J.
Chauhan, Sanjay
Kulkarni, Ragini
Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India
title Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India
title_full Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India
title_fullStr Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India
title_full_unstemmed Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India
title_short Experiences of sharing results of community based serosurvey with participants in a district of Maharashtra, India
title_sort experiences of sharing results of community based serosurvey with participants in a district of maharashtra, india
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9352079/
https://www.ncbi.nlm.nih.gov/pubmed/35925959
http://dx.doi.org/10.1371/journal.pone.0271920
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