Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents

This study examined the agreement of perceived health-related quality of life (HRQOL) between caregivers and autistic children and adolescents (n = 133, 5–12 years) using the Pediatric Quality of Life Inventory Generic Core Scales, Fourth Edition (PedsQL 4.0). Results reveal good to excellent agreem...

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Autores principales: Lopez-Espejo, Mauricio A., Nuñez, Alicia C., Ruz, Melanie, Saez, Valentina, Moscoso, Odalie C., Escobar, Raul G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2022
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9362400/
https://www.ncbi.nlm.nih.gov/pubmed/35922687
http://dx.doi.org/10.1007/s10803-022-05689-7
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author Lopez-Espejo, Mauricio A.
Nuñez, Alicia C.
Ruz, Melanie
Saez, Valentina
Moscoso, Odalie C.
Escobar, Raul G.
author_facet Lopez-Espejo, Mauricio A.
Nuñez, Alicia C.
Ruz, Melanie
Saez, Valentina
Moscoso, Odalie C.
Escobar, Raul G.
author_sort Lopez-Espejo, Mauricio A.
collection PubMed
description This study examined the agreement of perceived health-related quality of life (HRQOL) between caregivers and autistic children and adolescents (n = 133, 5–12 years) using the Pediatric Quality of Life Inventory Generic Core Scales, Fourth Edition (PedsQL 4.0). Results reveal good to excellent agreement over this age range across the total, physical, and psychosocial health scales. However, the emotional, social, and school functioning scores demonstrated lower agreement in dyads with children aged 5–7 than in dyads with children aged 8–12 years. Despite these differences in agreement, overall, the PedsQL 4.0 caregiver-module is a reliable instrument for measuring HRQOL in autistic individuals aged 5–12 years.
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spelling pubmed-93624002022-08-10 Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents Lopez-Espejo, Mauricio A. Nuñez, Alicia C. Ruz, Melanie Saez, Valentina Moscoso, Odalie C. Escobar, Raul G. J Autism Dev Disord Original Paper This study examined the agreement of perceived health-related quality of life (HRQOL) between caregivers and autistic children and adolescents (n = 133, 5–12 years) using the Pediatric Quality of Life Inventory Generic Core Scales, Fourth Edition (PedsQL 4.0). Results reveal good to excellent agreement over this age range across the total, physical, and psychosocial health scales. However, the emotional, social, and school functioning scores demonstrated lower agreement in dyads with children aged 5–7 than in dyads with children aged 8–12 years. Despite these differences in agreement, overall, the PedsQL 4.0 caregiver-module is a reliable instrument for measuring HRQOL in autistic individuals aged 5–12 years. Springer US 2022-08-03 2023 /pmc/articles/PMC9362400/ /pubmed/35922687 http://dx.doi.org/10.1007/s10803-022-05689-7 Text en © The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2022, Springer Nature or its licensor holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Paper
Lopez-Espejo, Mauricio A.
Nuñez, Alicia C.
Ruz, Melanie
Saez, Valentina
Moscoso, Odalie C.
Escobar, Raul G.
Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents
title Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents
title_full Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents
title_fullStr Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents
title_full_unstemmed Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents
title_short Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents
title_sort caregiver-child agreement in health-related quality of life of autistic children and adolescents
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9362400/
https://www.ncbi.nlm.nih.gov/pubmed/35922687
http://dx.doi.org/10.1007/s10803-022-05689-7
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