Cargando…

Using codesign focus groups to develop an online COmmunity suPporting familiEs after Sudden Cardiac Death (COPE-SCD) in the young

OBJECTIVE: To codesign an online support intervention for families after sudden cardiac death (SCD) in the young (<35 years). DESIGN: Codesign of an SCD family intervention by stakeholder focus groups. SETTING: Families and healthcare professionals with experience in SCD in the young. PARTICIPANT...

Descripción completa

Detalles Bibliográficos
Autores principales:	Yeates, Laura, Gardner, Karen, Do, Judy, van den Heuvel, Lieke, Fleming, Gabrielle, Semsarian, Christopher, McEwen, Alison, Adlard, Leesa, Ingles, Jodie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2022
Materias:	Cardiovascular Medicine
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9362800/ http://dx.doi.org/10.1136/bmjopen-2021-053785

Ejemplares similares

Needs analysis of parents following sudden cardiac death in the young
por: McDonald, Kristie, et al.
Publicado: (2020)

What do we do and how do we do it? Assessing genetic counselling in the modern era
por: Yeates, Laura, et al.
Publicado: (2020)

Evaluating a custom-designed aid to improve communication of genetic results in families with hypertrophic cardiomyopathy: study protocol for a randomised controlled trial
por: Burns, Charlotte, et al.
Publicado: (2019)

The patient experience of radiotherapy for breast cancer: A qualitative investigation as part of the SuPPORT 4 All study
por: Probst, H., et al.
Publicado: (2021)

A prospective longitudinal study of health-related quality of life and psychological wellbeing after an implantable cardioverter-defibrillator in patients with genetic heart diseases
por: van den Heuvel, Lieke M., et al.
Publicado: (2022)

Molecular autopsy in victims of inherited arrhythmias
por: Semsarian, Christopher, et al.
Publicado: (2016)

The burden of splice-disrupting variants in inherited heart disease and unexplained sudden cardiac death
por: Singer, Emma S., et al.
Publicado: (2023)

Rare desmin variant causing penetrant life-threatening arrhythmic cardiomyopathy
por: Oomen, Ad W.G.J., et al.
Publicado: (2018)

The University of Queensland study of physical and psychological outcomes for claimants with minor and moderate injuries following a road traffic crash (UQ SuPPORT): design and methods
por: Kenardy, Justin, et al.
Publicado: (2014)

The Australian Genetic Heart Disease Registry: Protocol for a Data Linkage Study
por: Butters, Alexandra, et al.
Publicado: (2023)

Sudden Cardiac Arrest in the Paediatric Population
por: Franciosi, Sonia, et al.
Publicado: (2022)

Routinely collected health data to study inherited heart disease: a systematic review (2000–2016)
por: Blanch, Bianca, et al.
Publicado: (2017)

Sudden Cardiac Death (SCD) – risk stratification and prediction with molecular biomarkers
por: Osman, Junaida, et al.
Publicado: (2019)

Comparison of conventional autopsy and magnetic resonance imaging in determining the cause of sudden death in the young
por: Puranik, Rajesh, et al.
Publicado: (2014)

Handbook of hardware/software codesign
por: Ha, Soonhoi, et al.
Publicado: (2017)

Development of a communication aid for explaining hypertrophic cardiomyopathy genetic test results
por: Smagarinsky, Yana, et al.
Publicado: (2017)

A codesigned fit‐for‐purpose implementation framework for aged care
por: Meyer, Claudia, et al.
Publicado: (2022)

Physical activity in hypertrophic cardiomyopathy: prevalence of inactivity and perceived barriers
por: Sweeting, Joanna, et al.
Publicado: (2016)

Rationale and design of the Pan-African Sudden Cardiac Death survey: the Pan-African SCD study
por: Bonny, Aimé, et al.
Publicado: (2014)

Metabolic risk factors associated with sudden cardiac death (SCD) during acute myocardial ischemia
por: Wang, Dian, et al.
Publicado: (2017)

Exome sequencing identifies a novel mutation in the MYH6 gene in a family with early-onset sinus node dysfunction, ventricular arrhythmias, and cardiac arrest()
por: Lam, Lien, et al.
Publicado: (2015)

LAMP2 shines a light on cardiomyopathy in an athlete
por: Martin, Sophie, et al.
Publicado: (2017)

Obesity in young sudden cardiac death: Rates, clinical features, and insights into people with body mass index >50kg/m(2)
por: Paratz, Elizabeth D, et al.
Publicado: (2022)

A Practical Introduction to HardwareSoftware Codesign
por: Schaumont, Patrick R
Publicado: (2013)

Unpacking the potential of developmental evaluation in codesign work
por: Buettgen, Alexis, et al.
Publicado: (2022)

Five psychological principles of codesigning conservation with (not for) communities
por: Cranston, Kayla A., et al.
Publicado: (2022)

Relations between right ventricular morphology and clinical, electrical and genetic parameters in Brugada Syndrome
por: Gray, Belinda, et al.
Publicado: (2018)

Genetic Basis of Sudden Unexpected Death in Epilepsy
por: Bagnall, Richard D., et al.
Publicado: (2017)

Genetic architecture of left ventricular noncompaction in adults
por: Ross, Samantha Barratt, et al.
Publicado: (2020)

Investigation on robust codesign methods for networked control systems
por: Al-Areqi, Sanad
Publicado: (2015)

Hardware, Software, and Wetware Codesign Environment for Synthetic Biology
por: Oliveira, Samuel M. D., et al.
Publicado: (2022)

Escuchelo es su hijo: es su hijo :respuestas a los problemas básicos de la relacion padre hijos /
por: Rapaille, Gilbert C.
Publicado: (1980)

External validation of the HCM Risk-Kids model for predicting sudden cardiac death in childhood hypertrophic cardiomyopathy
por: Norrish, Gabrielle, et al.
Publicado: (2021)

Vibrant architecture: material realm as a codesigner of living spaces
por: Armstrong, Rachel
Publicado: (2015)

C/VHDL Codesign for LHCb VELO zero-suppression algorithms
por: Muecke, Manfred
Publicado: (2005)

C/VHDL Codesign for LHCb VELO zero suppression algorithms
por: Muecke, Manfred
Publicado: (2005)

Open-source FPGA-ML codesign for the MLPerf Tiny Benchmark
por: Borras, Hendrik, et al.
Publicado: (2022)

Rosuvastatin calcium nanoparticles: Improving bioavailability by formulation and stabilization codesign
por: Alshora, Doaa H., et al.
Publicado: (2018)

Use of codesign in primary care research: real-life examples
por: Goodyear-Smith, Felicity
Publicado: (2021)

World Coalition on SCD launches, sparking global focus on SCD diagnosis and care
por: Zapfel, Andrew, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_rmvgdvmqejejcnsub3t1ger5d3