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Careful: An administrative child welfare and electronic health records linked dataset
Between 2012 and 2017, N = 2814 youth between the ages of 4 and 20 were in child protective services (CPS) custody in Hamilton County, Ohio, and placed in out-of-home care. Child welfare administrative records were extracted and linked to electronic health records for all encounters at Cincinnati Ch...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9364087/ https://www.ncbi.nlm.nih.gov/pubmed/35966947 http://dx.doi.org/10.1016/j.dib.2022.108507 |
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author | Beal, Sarah J. Nause, Katie Ammerman, Robert T. Hall, Eric S. Mara, Constance A. Greiner, Mary V. |
author_facet | Beal, Sarah J. Nause, Katie Ammerman, Robert T. Hall, Eric S. Mara, Constance A. Greiner, Mary V. |
author_sort | Beal, Sarah J. |
collection | PubMed |
description | Between 2012 and 2017, N = 2814 youth between the ages of 4 and 20 were in child protective services (CPS) custody in Hamilton County, Ohio, and placed in out-of-home care. Child welfare administrative records were extracted and linked to electronic health records for all encounters at Cincinnati Children's Hospital Medical Center, with n = 2787 (99.1%) of records successfully linked prior to de-identifying the data for research purposes. Child welfare administrative data fields in the dataset include demographics, dates of entry into and exit from protective custody and out-of-home care, reasons for entry into custody, dates of placement changes, reasons for placement changes, and types of placement (e.g., foster home, kinship home, group home, residential treatment, independent living). Electronic health records (EHR) data fields include demographics, all inpatient and outpatient encounters with medications, diagnoses, screening results, laboratory test results, flowsheet data, and problem list entries. Data have been coded to capture broader categories of health needs and encounter details, medications, and other health concerns. Due to the high representation of children in CPS custody and out-of-home care who are also represented in the EHR data, this dataset provides a comprehensive view of the medical needs and health concerns for school-aged children in CPS custody in an entire county. As a result, these data can be useful for understanding the emergence of global and specific health concerns, frequency of healthcare use, and placement stability for all youth in CPS custody in this community, accounting for variation due to other health and child welfare factors. These data are likely generalizable to other mid-sized urban communities where academic medical centers provide healthcare for children in CPS custody. De-identified data may be made available to other researchers with approved data transfer agreements between academic institutions in place. |
format | Online Article Text |
id | pubmed-9364087 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-93640872022-08-11 Careful: An administrative child welfare and electronic health records linked dataset Beal, Sarah J. Nause, Katie Ammerman, Robert T. Hall, Eric S. Mara, Constance A. Greiner, Mary V. Data Brief Data Article Between 2012 and 2017, N = 2814 youth between the ages of 4 and 20 were in child protective services (CPS) custody in Hamilton County, Ohio, and placed in out-of-home care. Child welfare administrative records were extracted and linked to electronic health records for all encounters at Cincinnati Children's Hospital Medical Center, with n = 2787 (99.1%) of records successfully linked prior to de-identifying the data for research purposes. Child welfare administrative data fields in the dataset include demographics, dates of entry into and exit from protective custody and out-of-home care, reasons for entry into custody, dates of placement changes, reasons for placement changes, and types of placement (e.g., foster home, kinship home, group home, residential treatment, independent living). Electronic health records (EHR) data fields include demographics, all inpatient and outpatient encounters with medications, diagnoses, screening results, laboratory test results, flowsheet data, and problem list entries. Data have been coded to capture broader categories of health needs and encounter details, medications, and other health concerns. Due to the high representation of children in CPS custody and out-of-home care who are also represented in the EHR data, this dataset provides a comprehensive view of the medical needs and health concerns for school-aged children in CPS custody in an entire county. As a result, these data can be useful for understanding the emergence of global and specific health concerns, frequency of healthcare use, and placement stability for all youth in CPS custody in this community, accounting for variation due to other health and child welfare factors. These data are likely generalizable to other mid-sized urban communities where academic medical centers provide healthcare for children in CPS custody. De-identified data may be made available to other researchers with approved data transfer agreements between academic institutions in place. Elsevier 2022-08-02 /pmc/articles/PMC9364087/ /pubmed/35966947 http://dx.doi.org/10.1016/j.dib.2022.108507 Text en © 2022 The Author(s). Published by Elsevier Inc. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
spellingShingle | Data Article Beal, Sarah J. Nause, Katie Ammerman, Robert T. Hall, Eric S. Mara, Constance A. Greiner, Mary V. Careful: An administrative child welfare and electronic health records linked dataset |
title | Careful: An administrative child welfare and electronic health records linked dataset |
title_full | Careful: An administrative child welfare and electronic health records linked dataset |
title_fullStr | Careful: An administrative child welfare and electronic health records linked dataset |
title_full_unstemmed | Careful: An administrative child welfare and electronic health records linked dataset |
title_short | Careful: An administrative child welfare and electronic health records linked dataset |
title_sort | careful: an administrative child welfare and electronic health records linked dataset |
topic | Data Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9364087/ https://www.ncbi.nlm.nih.gov/pubmed/35966947 http://dx.doi.org/10.1016/j.dib.2022.108507 |
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