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Priorities for rheumatic and musculoskeletal disease research in Ireland

BACKGROUND: Research priority setting is a useful approach to decide which unanswered questions are most worth trying to solve through research. The aim is to reduce bias in the research agenda. Traditionally, research was decided by funders, policymakers, and academics with limited influence from o...

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Autores principales: Dorris, Emma R., Grealis, Stacey, Kegl, Karmen, Kennedy, Norelee, Larkin, Louise, Lynch, Brian, Moran, Ailis, O’Brien, Justine, Skeffington, Stephanie, Slater, Kayleigh, Ward, Rebecca, Willett, Allison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9365446/
https://www.ncbi.nlm.nih.gov/pubmed/35948949
http://dx.doi.org/10.1186/s41927-022-00285-9
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author Dorris, Emma R.
Grealis, Stacey
Kegl, Karmen
Kennedy, Norelee
Larkin, Louise
Lynch, Brian
Moran, Ailis
O’Brien, Justine
Skeffington, Stephanie
Slater, Kayleigh
Ward, Rebecca
Willett, Allison
author_facet Dorris, Emma R.
Grealis, Stacey
Kegl, Karmen
Kennedy, Norelee
Larkin, Louise
Lynch, Brian
Moran, Ailis
O’Brien, Justine
Skeffington, Stephanie
Slater, Kayleigh
Ward, Rebecca
Willett, Allison
author_sort Dorris, Emma R.
collection PubMed
description BACKGROUND: Research priority setting is a useful approach to decide which unanswered questions are most worth trying to solve through research. The aim is to reduce bias in the research agenda. Traditionally, research was decided by funders, policymakers, and academics with limited influence from other stakeholders like people living with health conditions, caregivers, or the community. This can lead to research gaps that fail to address these important stakeholder needs. The objective of this study is to identify the top research priorities for Rheumatic and Musculoskeletal Disease (RMD) research in Ireland. METHODS: The process framework included a design workshop, two online surveys and a review of the literature. PARTICIPANTS: 545 people completed the first survey to identify RMD research topics relevant to Ireland, of which 72% identified as a person living with RMD. 460 people completed the second survey to prioritise these research topics. RESULTS: The first survey had 2185 research topics submitted. These were analysed and grouped into 38 topic areas which were ranked in the second survey. The top three research priorities for RMD research in Ireland focused on preventing RMD progression, RMD diagnosis and its impact, and pain management. CONCLUSIONS: The prioritised research topics indicate important areas of RMD research for Ireland. Research funded in response to these co-created research priorities will have increased relevance and impact. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s41927-022-00285-9.
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spelling pubmed-93654462022-08-11 Priorities for rheumatic and musculoskeletal disease research in Ireland Dorris, Emma R. Grealis, Stacey Kegl, Karmen Kennedy, Norelee Larkin, Louise Lynch, Brian Moran, Ailis O’Brien, Justine Skeffington, Stephanie Slater, Kayleigh Ward, Rebecca Willett, Allison BMC Rheumatol Research Article BACKGROUND: Research priority setting is a useful approach to decide which unanswered questions are most worth trying to solve through research. The aim is to reduce bias in the research agenda. Traditionally, research was decided by funders, policymakers, and academics with limited influence from other stakeholders like people living with health conditions, caregivers, or the community. This can lead to research gaps that fail to address these important stakeholder needs. The objective of this study is to identify the top research priorities for Rheumatic and Musculoskeletal Disease (RMD) research in Ireland. METHODS: The process framework included a design workshop, two online surveys and a review of the literature. PARTICIPANTS: 545 people completed the first survey to identify RMD research topics relevant to Ireland, of which 72% identified as a person living with RMD. 460 people completed the second survey to prioritise these research topics. RESULTS: The first survey had 2185 research topics submitted. These were analysed and grouped into 38 topic areas which were ranked in the second survey. The top three research priorities for RMD research in Ireland focused on preventing RMD progression, RMD diagnosis and its impact, and pain management. CONCLUSIONS: The prioritised research topics indicate important areas of RMD research for Ireland. Research funded in response to these co-created research priorities will have increased relevance and impact. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s41927-022-00285-9. BioMed Central 2022-08-11 /pmc/articles/PMC9365446/ /pubmed/35948949 http://dx.doi.org/10.1186/s41927-022-00285-9 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/ Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Dorris, Emma R.
Grealis, Stacey
Kegl, Karmen
Kennedy, Norelee
Larkin, Louise
Lynch, Brian
Moran, Ailis
O’Brien, Justine
Skeffington, Stephanie
Slater, Kayleigh
Ward, Rebecca
Willett, Allison
Priorities for rheumatic and musculoskeletal disease research in Ireland
title Priorities for rheumatic and musculoskeletal disease research in Ireland
title_full Priorities for rheumatic and musculoskeletal disease research in Ireland
title_fullStr Priorities for rheumatic and musculoskeletal disease research in Ireland
title_full_unstemmed Priorities for rheumatic and musculoskeletal disease research in Ireland
title_short Priorities for rheumatic and musculoskeletal disease research in Ireland
title_sort priorities for rheumatic and musculoskeletal disease research in ireland
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9365446/
https://www.ncbi.nlm.nih.gov/pubmed/35948949
http://dx.doi.org/10.1186/s41927-022-00285-9
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