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Opportunities for a population-based cohort in Belgium
Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and del...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9366127/ https://www.ncbi.nlm.nih.gov/pubmed/35953875 http://dx.doi.org/10.1186/s13690-022-00949-5 |
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author | Schutte, Nienke Saelaert, Marlies Bogaert, Petronille De Ridder, Karin Van Oyen, Herman Van der Heyden, Johan Devleesschauwer, Brecht |
author_facet | Schutte, Nienke Saelaert, Marlies Bogaert, Petronille De Ridder, Karin Van Oyen, Herman Van der Heyden, Johan Devleesschauwer, Brecht |
author_sort | Schutte, Nienke |
collection | PubMed |
description | Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and deliberative processes have been set up to explore the opportunities for a population-based cohort in Belgium. Through these processes, several recommendations emerged to pave the way forward – i.e., to facilitate the establishment of administrative linkages, increase digitalisation, secure long-term financial and organisational efforts, establish a consortium of the willing, and identify and tackle ethical and legal bottlenecks. This comment summarizes these recommendations, as these opportunities should be explored in depth to consolidate the existing collaborations between different stakeholders, and refers to current initiatives that can further facilitate the establishment of a Belgian population-based cohort and, more generally, administrative and health data linkage and reuse for research and policy-making. |
format | Online Article Text |
id | pubmed-9366127 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-93661272022-08-11 Opportunities for a population-based cohort in Belgium Schutte, Nienke Saelaert, Marlies Bogaert, Petronille De Ridder, Karin Van Oyen, Herman Van der Heyden, Johan Devleesschauwer, Brecht Arch Public Health Comment Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and deliberative processes have been set up to explore the opportunities for a population-based cohort in Belgium. Through these processes, several recommendations emerged to pave the way forward – i.e., to facilitate the establishment of administrative linkages, increase digitalisation, secure long-term financial and organisational efforts, establish a consortium of the willing, and identify and tackle ethical and legal bottlenecks. This comment summarizes these recommendations, as these opportunities should be explored in depth to consolidate the existing collaborations between different stakeholders, and refers to current initiatives that can further facilitate the establishment of a Belgian population-based cohort and, more generally, administrative and health data linkage and reuse for research and policy-making. BioMed Central 2022-08-11 /pmc/articles/PMC9366127/ /pubmed/35953875 http://dx.doi.org/10.1186/s13690-022-00949-5 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Comment Schutte, Nienke Saelaert, Marlies Bogaert, Petronille De Ridder, Karin Van Oyen, Herman Van der Heyden, Johan Devleesschauwer, Brecht Opportunities for a population-based cohort in Belgium |
title | Opportunities for a population-based cohort in Belgium |
title_full | Opportunities for a population-based cohort in Belgium |
title_fullStr | Opportunities for a population-based cohort in Belgium |
title_full_unstemmed | Opportunities for a population-based cohort in Belgium |
title_short | Opportunities for a population-based cohort in Belgium |
title_sort | opportunities for a population-based cohort in belgium |
topic | Comment |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9366127/ https://www.ncbi.nlm.nih.gov/pubmed/35953875 http://dx.doi.org/10.1186/s13690-022-00949-5 |
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