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Opportunities for a population-based cohort in Belgium

Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and del...

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Autores principales: Schutte, Nienke, Saelaert, Marlies, Bogaert, Petronille, De Ridder, Karin, Van Oyen, Herman, Van der Heyden, Johan, Devleesschauwer, Brecht
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9366127/
https://www.ncbi.nlm.nih.gov/pubmed/35953875
http://dx.doi.org/10.1186/s13690-022-00949-5
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author Schutte, Nienke
Saelaert, Marlies
Bogaert, Petronille
De Ridder, Karin
Van Oyen, Herman
Van der Heyden, Johan
Devleesschauwer, Brecht
author_facet Schutte, Nienke
Saelaert, Marlies
Bogaert, Petronille
De Ridder, Karin
Van Oyen, Herman
Van der Heyden, Johan
Devleesschauwer, Brecht
author_sort Schutte, Nienke
collection PubMed
description Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and deliberative processes have been set up to explore the opportunities for a population-based cohort in Belgium. Through these processes, several recommendations emerged to pave the way forward – i.e., to facilitate the establishment of administrative linkages, increase digitalisation, secure long-term financial and organisational efforts, establish a consortium of the willing, and identify and tackle ethical and legal bottlenecks. This comment summarizes these recommendations, as these opportunities should be explored in depth to consolidate the existing collaborations between different stakeholders, and refers to current initiatives that can further facilitate the establishment of a Belgian population-based cohort and, more generally, administrative and health data linkage and reuse for research and policy-making.
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spelling pubmed-93661272022-08-11 Opportunities for a population-based cohort in Belgium Schutte, Nienke Saelaert, Marlies Bogaert, Petronille De Ridder, Karin Van Oyen, Herman Van der Heyden, Johan Devleesschauwer, Brecht Arch Public Health Comment Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and deliberative processes have been set up to explore the opportunities for a population-based cohort in Belgium. Through these processes, several recommendations emerged to pave the way forward – i.e., to facilitate the establishment of administrative linkages, increase digitalisation, secure long-term financial and organisational efforts, establish a consortium of the willing, and identify and tackle ethical and legal bottlenecks. This comment summarizes these recommendations, as these opportunities should be explored in depth to consolidate the existing collaborations between different stakeholders, and refers to current initiatives that can further facilitate the establishment of a Belgian population-based cohort and, more generally, administrative and health data linkage and reuse for research and policy-making. BioMed Central 2022-08-11 /pmc/articles/PMC9366127/ /pubmed/35953875 http://dx.doi.org/10.1186/s13690-022-00949-5 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Comment
Schutte, Nienke
Saelaert, Marlies
Bogaert, Petronille
De Ridder, Karin
Van Oyen, Herman
Van der Heyden, Johan
Devleesschauwer, Brecht
Opportunities for a population-based cohort in Belgium
title Opportunities for a population-based cohort in Belgium
title_full Opportunities for a population-based cohort in Belgium
title_fullStr Opportunities for a population-based cohort in Belgium
title_full_unstemmed Opportunities for a population-based cohort in Belgium
title_short Opportunities for a population-based cohort in Belgium
title_sort opportunities for a population-based cohort in belgium
topic Comment
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9366127/
https://www.ncbi.nlm.nih.gov/pubmed/35953875
http://dx.doi.org/10.1186/s13690-022-00949-5
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