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Adapting a Cancer Screening Education Program for Native American Women with Disabilities

Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely...

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Autores principales: Armin, Julie S., Williamson, Heather J., Begay, Andria, Etcitty, Jennifer, Attakai, Agnes, Russell, Kim, Baldwin, Julie A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368495/
https://www.ncbi.nlm.nih.gov/pubmed/35954636
http://dx.doi.org/10.3390/ijerph19159280
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author Armin, Julie S.
Williamson, Heather J.
Begay, Andria
Etcitty, Jennifer
Attakai, Agnes
Russell, Kim
Baldwin, Julie A.
author_facet Armin, Julie S.
Williamson, Heather J.
Begay, Andria
Etcitty, Jennifer
Attakai, Agnes
Russell, Kim
Baldwin, Julie A.
author_sort Armin, Julie S.
collection PubMed
description Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.
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spelling pubmed-93684952022-08-12 Adapting a Cancer Screening Education Program for Native American Women with Disabilities Armin, Julie S. Williamson, Heather J. Begay, Andria Etcitty, Jennifer Attakai, Agnes Russell, Kim Baldwin, Julie A. Int J Environ Res Public Health Article Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD. MDPI 2022-07-29 /pmc/articles/PMC9368495/ /pubmed/35954636 http://dx.doi.org/10.3390/ijerph19159280 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Armin, Julie S.
Williamson, Heather J.
Begay, Andria
Etcitty, Jennifer
Attakai, Agnes
Russell, Kim
Baldwin, Julie A.
Adapting a Cancer Screening Education Program for Native American Women with Disabilities
title Adapting a Cancer Screening Education Program for Native American Women with Disabilities
title_full Adapting a Cancer Screening Education Program for Native American Women with Disabilities
title_fullStr Adapting a Cancer Screening Education Program for Native American Women with Disabilities
title_full_unstemmed Adapting a Cancer Screening Education Program for Native American Women with Disabilities
title_short Adapting a Cancer Screening Education Program for Native American Women with Disabilities
title_sort adapting a cancer screening education program for native american women with disabilities
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368495/
https://www.ncbi.nlm.nih.gov/pubmed/35954636
http://dx.doi.org/10.3390/ijerph19159280
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