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The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience

The study retraces the healthcare pathway of patients affected by diabetic macular edema (DME) through the direct voice of patients and caregivers by using a “patient journey” and narrative method approach. The mapping of the patient’s journey was developed by a multidisciplinary board of health pro...

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Autores principales: Midena, Edoardo, Polo, Chiara, Frizziero, Luisa, Marini, Maria Giulia, Lattanzio, Rosangela, Vadalà, Maria, Pilotto, Elisabetta, Varano, Monica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368569/
https://www.ncbi.nlm.nih.gov/pubmed/35954724
http://dx.doi.org/10.3390/ijerph19159367
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author Midena, Edoardo
Polo, Chiara
Frizziero, Luisa
Marini, Maria Giulia
Lattanzio, Rosangela
Vadalà, Maria
Pilotto, Elisabetta
Varano, Monica
author_facet Midena, Edoardo
Polo, Chiara
Frizziero, Luisa
Marini, Maria Giulia
Lattanzio, Rosangela
Vadalà, Maria
Pilotto, Elisabetta
Varano, Monica
author_sort Midena, Edoardo
collection PubMed
description The study retraces the healthcare pathway of patients affected by diabetic macular edema (DME) through the direct voice of patients and caregivers by using a “patient journey” and narrative method approach. The mapping of the patient’s journey was developed by a multidisciplinary board of health professionals and involved four Italian retina centers. DME patients on intravitreal injection therapy and caregivers were interviewed according to the narrative medicine approach. Narratives were analyzed through a quali-quantitative tool, as set by the narrative medicine method. The study involved four specialized retina centers in Italy and collected a total of 106 narratives, 82 from DME patients and 24 from caregivers. The narratives reported their difficulty in identifying the correct pathway of care because of a limited awareness of diabetes and its complications. Patients experienced reduced autonomy due to ocular complications. In the treatment of diabetes and its complications, a multidisciplinary approach currently appears to be missing. DME reduces the quality of life of affected patients. The narrative medicine approach offers qualitative and emotional patient-guided information. The patient journey provides all of those involved in the management of DME with flowcharts to refer to, identifying the critical points in the healthcare journey of DME patients to improve the management of the disease.
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spelling pubmed-93685692022-08-12 The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience Midena, Edoardo Polo, Chiara Frizziero, Luisa Marini, Maria Giulia Lattanzio, Rosangela Vadalà, Maria Pilotto, Elisabetta Varano, Monica Int J Environ Res Public Health Article The study retraces the healthcare pathway of patients affected by diabetic macular edema (DME) through the direct voice of patients and caregivers by using a “patient journey” and narrative method approach. The mapping of the patient’s journey was developed by a multidisciplinary board of health professionals and involved four Italian retina centers. DME patients on intravitreal injection therapy and caregivers were interviewed according to the narrative medicine approach. Narratives were analyzed through a quali-quantitative tool, as set by the narrative medicine method. The study involved four specialized retina centers in Italy and collected a total of 106 narratives, 82 from DME patients and 24 from caregivers. The narratives reported their difficulty in identifying the correct pathway of care because of a limited awareness of diabetes and its complications. Patients experienced reduced autonomy due to ocular complications. In the treatment of diabetes and its complications, a multidisciplinary approach currently appears to be missing. DME reduces the quality of life of affected patients. The narrative medicine approach offers qualitative and emotional patient-guided information. The patient journey provides all of those involved in the management of DME with flowcharts to refer to, identifying the critical points in the healthcare journey of DME patients to improve the management of the disease. MDPI 2022-07-30 /pmc/articles/PMC9368569/ /pubmed/35954724 http://dx.doi.org/10.3390/ijerph19159367 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Midena, Edoardo
Polo, Chiara
Frizziero, Luisa
Marini, Maria Giulia
Lattanzio, Rosangela
Vadalà, Maria
Pilotto, Elisabetta
Varano, Monica
The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience
title The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience
title_full The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience
title_fullStr The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience
title_full_unstemmed The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience
title_short The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience
title_sort narrative medicine approach in the treatment of diabetic macular edema: an italian experience
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368569/
https://www.ncbi.nlm.nih.gov/pubmed/35954724
http://dx.doi.org/10.3390/ijerph19159367
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