Cargando…

A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs

AIMS: Carers of individuals presenting with complex behavioural and mental health needs report that service users may not receive the provision of care they require, particularly when presenting following suicide attempts and self-harm. Carers are an integral part of the care system and often feel i...

Descripción completa

Detalles Bibliográficos
Autores principales: Saini, Pooja, Roks, Hana, Sambrook, Laura, Balmer, Anna, McIntyre, Jason, Martin, Antony, Tait, Jackie, Ashley-Mudie, Peter, Shetty, Amrith, Nathan, Rajan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9378117/
http://dx.doi.org/10.1192/bjo.2022.240
_version_ 1784768485014896640
author Saini, Pooja
Roks, Hana
Sambrook, Laura
Balmer, Anna
McIntyre, Jason
Martin, Antony
Tait, Jackie
Ashley-Mudie, Peter
Shetty, Amrith
Nathan, Rajan
author_facet Saini, Pooja
Roks, Hana
Sambrook, Laura
Balmer, Anna
McIntyre, Jason
Martin, Antony
Tait, Jackie
Ashley-Mudie, Peter
Shetty, Amrith
Nathan, Rajan
author_sort Saini, Pooja
collection PubMed
description AIMS: Carers of individuals presenting with complex behavioural and mental health needs report that service users may not receive the provision of care they require, particularly when presenting following suicide attempts and self-harm. Carers are an integral part of the care system and often feel ignored and marginalised by services; there is a lack of involvement of carers and paucity of their views of support needs to be explored. The aim of the study is to understand carers’ experiences of caring for service users with complex mental health needs who self-harm and/or attempt suicide, and the support received from mental health care services. METHODS: Ten carers of service users with complex mental health needs were interviewed about their views on the psychiatric admission, treatment and discharge process for the people they were caring for. Data were gathered during semi-structured, one-to-one interviews remotely over the phone or online platforms. Interviews were audio-recoded and transcribed verbatim. A transcript-based conceptual analysis was conducted to identify and explore emerging themes. RESULTS: Carers identified both positive and negative aspects of the psychiatric admission and care within community settings. The following key themes emerged from the interviews: lack of control and information from mental health services, the importance of support from staff, or conversely its absence; concerns about service users’ vulnerability, negative staff attitudes and opportunities for involvement; negative experiences of generic psychiatric settings; positive experiences were encountered when there were supportive and caring staff, good information sharing and satisfactory discharge arrangements. CONCLUSION: Important areas for service improvements are highlighted. Recommendations included: the need for support; information about suicidal behaviour and advice on managing further incidents at home; more support in coping with regular and escalating self-harming and suicidal behaviours, particularly, severe consequences of staff safeguarding errors and inappropriate discharge, and the importance of supportive and adept staff. These findings identify the need for tailored support for carers regarding the management of self-harm and suicidal behaviours in the community.
format Online
Article
Text
id pubmed-9378117
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Cambridge University Press
record_format MEDLINE/PubMed
spelling pubmed-93781172022-08-18 A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs Saini, Pooja Roks, Hana Sambrook, Laura Balmer, Anna McIntyre, Jason Martin, Antony Tait, Jackie Ashley-Mudie, Peter Shetty, Amrith Nathan, Rajan BJPsych Open Research AIMS: Carers of individuals presenting with complex behavioural and mental health needs report that service users may not receive the provision of care they require, particularly when presenting following suicide attempts and self-harm. Carers are an integral part of the care system and often feel ignored and marginalised by services; there is a lack of involvement of carers and paucity of their views of support needs to be explored. The aim of the study is to understand carers’ experiences of caring for service users with complex mental health needs who self-harm and/or attempt suicide, and the support received from mental health care services. METHODS: Ten carers of service users with complex mental health needs were interviewed about their views on the psychiatric admission, treatment and discharge process for the people they were caring for. Data were gathered during semi-structured, one-to-one interviews remotely over the phone or online platforms. Interviews were audio-recoded and transcribed verbatim. A transcript-based conceptual analysis was conducted to identify and explore emerging themes. RESULTS: Carers identified both positive and negative aspects of the psychiatric admission and care within community settings. The following key themes emerged from the interviews: lack of control and information from mental health services, the importance of support from staff, or conversely its absence; concerns about service users’ vulnerability, negative staff attitudes and opportunities for involvement; negative experiences of generic psychiatric settings; positive experiences were encountered when there were supportive and caring staff, good information sharing and satisfactory discharge arrangements. CONCLUSION: Important areas for service improvements are highlighted. Recommendations included: the need for support; information about suicidal behaviour and advice on managing further incidents at home; more support in coping with regular and escalating self-harming and suicidal behaviours, particularly, severe consequences of staff safeguarding errors and inappropriate discharge, and the importance of supportive and adept staff. These findings identify the need for tailored support for carers regarding the management of self-harm and suicidal behaviours in the community. Cambridge University Press 2022-06-20 /pmc/articles/PMC9378117/ http://dx.doi.org/10.1192/bjo.2022.240 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research
Saini, Pooja
Roks, Hana
Sambrook, Laura
Balmer, Anna
McIntyre, Jason
Martin, Antony
Tait, Jackie
Ashley-Mudie, Peter
Shetty, Amrith
Nathan, Rajan
A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs
title A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs
title_full A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs
title_fullStr A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs
title_full_unstemmed A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs
title_short A Qualitative Study Exploring the Experiences of Carers of Service Users With Complex Mental Health Needs
title_sort qualitative study exploring the experiences of carers of service users with complex mental health needs
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9378117/
http://dx.doi.org/10.1192/bjo.2022.240
work_keys_str_mv AT sainipooja aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT rokshana aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT sambrooklaura aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT balmeranna aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT mcintyrejason aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT martinantony aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT taitjackie aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT ashleymudiepeter aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT shettyamrith aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT nathanrajan aqualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT sainipooja qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT rokshana qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT sambrooklaura qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT balmeranna qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT mcintyrejason qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT martinantony qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT taitjackie qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT ashleymudiepeter qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT shettyamrith qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds
AT nathanrajan qualitativestudyexploringtheexperiencesofcarersofserviceuserswithcomplexmentalhealthneeds