The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN

Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by impaired mucociliary clearance leading to irreversible lung damage. In contrast to other rare lung diseases like cystic fibrosis (CF), there are only few clinical trials and limited evidence-based treatments. Management is...

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Detalles Bibliográficos
Autores principales: Raidt, Johanna, Maitre, Bernard, Pennekamp, Petra, Altenburg, Josje, Anagnostopoulou, Pinelopi, Armengot, Miguel, Bloemsma, Lizan D., Boon, Mieke, Borrelli, Melissa, Brinkmann, Folke, Carr, Siobhan B., Carroll, Mary P., Castillo-Corullón, Silvia, Coste, André, Cutrera, Renato, Dehlink, Eleonora, Destouches, Damien M.S., Di Cicco, Maria E., Dixon, Lucy, Emiralioglu, Nagehan, Erdem Eralp, Ela, Haarman, Eric G., Hogg, Claire, Karadag, Bulent, Kobbernagel, Helene E., Lorent, Natalie, Mall, Marcus A., Marthin, June K., Martinu, Vendula, Narayanan, Manjith, Ozcelik, Ugur, Peckham, Daniel, Pifferi, Massimo, Pohunek, Petr, Polverino, Eva, Range, Simon, Ringshausen, Felix C., Robson, Evie, Roehmel, Jobst, Rovira-Amigo, Sandra, Santamaria, Francesca, Schlegtendal, Anne, Szépfalusi, Zsolt, Tempels, Petra, Thouvenin, Guillaume, Ullmann, Nicola, Walker, Woolf T., Wetzke, Martin, Yiallouros, Panayiotis, Omran, Heymut, Nielsen, Kim G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2022
Materias:
Study Protocols
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9379353/
https://www.ncbi.nlm.nih.gov/pubmed/35983540
http://dx.doi.org/10.1183/23120541.00139-2022

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