Communicating the Spinal Muscular Atrophy diagnosis to children and the principle of autonomy

INTRODUCTION: The trinomial relationship between physicians/children/guardians is essential in the process of communicating a disease and its prognosis. OBJECTIVE: Analyzing the exercise of autonomy by this trinomial relationship in communicating the diagnosis of spinal muscular atrophy (SMA).   MET...

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Detalles Bibliográficos
Autores principales: Fernandes, Isabella Araujo Mota, Menezes, Renata Oliveira Almeida, Rego, Guilhermina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9386960/
https://www.ncbi.nlm.nih.gov/pubmed/35978280
http://dx.doi.org/10.1186/s12887-022-03552-3

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