Cargando…

The Burden of Living With Cutaneous Lupus Erythematosus

Cutaneous lupus erythematosus (CLE) is a group of heterogeneous autoimmune disorders primarily affecting the skin. Patients with these conditions are mostly young women when they become sick and often suffer from recurrent skin symptoms or longstanding changes in their physical appearance. CLE disor...

Descripción completa

Detalles Bibliográficos
Autores principales: Drenkard, Cristina, Barbour, Kamil E., Greenlund, Kurt J., Lim, S. Sam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9395260/
https://www.ncbi.nlm.nih.gov/pubmed/36017007
http://dx.doi.org/10.3389/fmed.2022.897987
_version_ 1784771650864021504
author Drenkard, Cristina
Barbour, Kamil E.
Greenlund, Kurt J.
Lim, S. Sam
author_facet Drenkard, Cristina
Barbour, Kamil E.
Greenlund, Kurt J.
Lim, S. Sam
author_sort Drenkard, Cristina
collection PubMed
description Cutaneous lupus erythematosus (CLE) is a group of heterogeneous autoimmune disorders primarily affecting the skin. Patients with these conditions are mostly young women when they become sick and often suffer from recurrent skin symptoms or longstanding changes in their physical appearance. CLE disorders lead to different levels of morbidity and can impact profoundly patients' quality of life, particularly in the psychological and social health domains. This review provides a summary of recent research investigating the psychosocial burden of living with CLE and the intersect amongst the disease characteristics, patient factors, and social determinants of health. Furthermore, this review provides insight into patient care and research needs that remain unmet to improve the quality of life of patients living with CLE.
format Online
Article
Text
id pubmed-9395260
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Frontiers Media S.A.
record_format MEDLINE/PubMed
spelling pubmed-93952602022-08-24 The Burden of Living With Cutaneous Lupus Erythematosus Drenkard, Cristina Barbour, Kamil E. Greenlund, Kurt J. Lim, S. Sam Front Med (Lausanne) Medicine Cutaneous lupus erythematosus (CLE) is a group of heterogeneous autoimmune disorders primarily affecting the skin. Patients with these conditions are mostly young women when they become sick and often suffer from recurrent skin symptoms or longstanding changes in their physical appearance. CLE disorders lead to different levels of morbidity and can impact profoundly patients' quality of life, particularly in the psychological and social health domains. This review provides a summary of recent research investigating the psychosocial burden of living with CLE and the intersect amongst the disease characteristics, patient factors, and social determinants of health. Furthermore, this review provides insight into patient care and research needs that remain unmet to improve the quality of life of patients living with CLE. Frontiers Media S.A. 2022-08-08 /pmc/articles/PMC9395260/ /pubmed/36017007 http://dx.doi.org/10.3389/fmed.2022.897987 Text en Copyright © 2022 Drenkard, Barbour, Greenlund and Lim. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Medicine
Drenkard, Cristina
Barbour, Kamil E.
Greenlund, Kurt J.
Lim, S. Sam
The Burden of Living With Cutaneous Lupus Erythematosus
title The Burden of Living With Cutaneous Lupus Erythematosus
title_full The Burden of Living With Cutaneous Lupus Erythematosus
title_fullStr The Burden of Living With Cutaneous Lupus Erythematosus
title_full_unstemmed The Burden of Living With Cutaneous Lupus Erythematosus
title_short The Burden of Living With Cutaneous Lupus Erythematosus
title_sort burden of living with cutaneous lupus erythematosus
topic Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9395260/
https://www.ncbi.nlm.nih.gov/pubmed/36017007
http://dx.doi.org/10.3389/fmed.2022.897987
work_keys_str_mv AT drenkardcristina theburdenoflivingwithcutaneouslupuserythematosus
AT barbourkamile theburdenoflivingwithcutaneouslupuserythematosus
AT greenlundkurtj theburdenoflivingwithcutaneouslupuserythematosus
AT limssam theburdenoflivingwithcutaneouslupuserythematosus
AT drenkardcristina burdenoflivingwithcutaneouslupuserythematosus
AT barbourkamile burdenoflivingwithcutaneouslupuserythematosus
AT greenlundkurtj burdenoflivingwithcutaneouslupuserythematosus
AT limssam burdenoflivingwithcutaneouslupuserythematosus