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Developmental Disability: Families and Functioning in Child and Adolescence

The WHO's International Classification of Functioning, Disability and Health (ICF) provides an integrated framework for health for everyone. Several aspects of this approach to health allow us to see people's lives in a richer and more holistic manner than has traditionally been the case b...

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Detalles Bibliográficos
Autor principal: Rosenbaum, Peter
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9397754/
https://www.ncbi.nlm.nih.gov/pubmed/36188766
http://dx.doi.org/10.3389/fresc.2021.709984
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author Rosenbaum, Peter
author_facet Rosenbaum, Peter
author_sort Rosenbaum, Peter
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description The WHO's International Classification of Functioning, Disability and Health (ICF) provides an integrated framework for health for everyone. Several aspects of this approach to health allow us to see people's lives in a richer and more holistic manner than has traditionally been the case based on diagnosis alone. These features include the positive language (emphasizing in particular “activity,” “participation,” and “personal factors”); the interconnections of the parts of this “dynamic system,” in which every component can influence every other one; and the formal inclusion of “contextual factors”—personal and environmental—that are otherwise too easy to take for granted and then ignore. This paper addresses the “environmental” dimension of the ICF framework—specifically referring to “family” as the central environmental force in the lives of children and adolescents. The perspectives of the author are those of a developmental pediatrician, whose career has focused on children with conditions that challenge their development, and their families. Lessons learned from a lifetime of work—including teaching and research as well as clinical services—are offered. Particular emphases will be on (i) the importance of focusing on the family in a non-judgmental “family-centered” way; (ii) how conceptual ideas about child (and family) development and parenting are as important as technical approaches to intervention; and (iii) how the ICF framework “allows”—indeed encourages—such a focus to have value and importance equal to the best of biomedical interventions. Examples from current research will illustrate how these ideas can be implemented.
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spelling pubmed-93977542022-09-29 Developmental Disability: Families and Functioning in Child and Adolescence Rosenbaum, Peter Front Rehabil Sci Rehabilitation Sciences The WHO's International Classification of Functioning, Disability and Health (ICF) provides an integrated framework for health for everyone. Several aspects of this approach to health allow us to see people's lives in a richer and more holistic manner than has traditionally been the case based on diagnosis alone. These features include the positive language (emphasizing in particular “activity,” “participation,” and “personal factors”); the interconnections of the parts of this “dynamic system,” in which every component can influence every other one; and the formal inclusion of “contextual factors”—personal and environmental—that are otherwise too easy to take for granted and then ignore. This paper addresses the “environmental” dimension of the ICF framework—specifically referring to “family” as the central environmental force in the lives of children and adolescents. The perspectives of the author are those of a developmental pediatrician, whose career has focused on children with conditions that challenge their development, and their families. Lessons learned from a lifetime of work—including teaching and research as well as clinical services—are offered. Particular emphases will be on (i) the importance of focusing on the family in a non-judgmental “family-centered” way; (ii) how conceptual ideas about child (and family) development and parenting are as important as technical approaches to intervention; and (iii) how the ICF framework “allows”—indeed encourages—such a focus to have value and importance equal to the best of biomedical interventions. Examples from current research will illustrate how these ideas can be implemented. Frontiers Media S.A. 2021-08-23 /pmc/articles/PMC9397754/ /pubmed/36188766 http://dx.doi.org/10.3389/fresc.2021.709984 Text en Copyright © 2021 Rosenbaum. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Rehabilitation Sciences
Rosenbaum, Peter
Developmental Disability: Families and Functioning in Child and Adolescence
title Developmental Disability: Families and Functioning in Child and Adolescence
title_full Developmental Disability: Families and Functioning in Child and Adolescence
title_fullStr Developmental Disability: Families and Functioning in Child and Adolescence
title_full_unstemmed Developmental Disability: Families and Functioning in Child and Adolescence
title_short Developmental Disability: Families and Functioning in Child and Adolescence
title_sort developmental disability: families and functioning in child and adolescence
topic Rehabilitation Sciences
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9397754/
https://www.ncbi.nlm.nih.gov/pubmed/36188766
http://dx.doi.org/10.3389/fresc.2021.709984
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