Ethical Considerations for Discrete Choice Experiments with Caregivers

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vu...

Descripción completa

Detalles Bibliográficos
Autores principales: Illes, Judy, Lawson, Ashley, McDonald, Patrick J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Empirical Studies on Ethical Issues in Special Research Settings
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9398987/
https://www.ncbi.nlm.nih.gov/pubmed/35849082
http://dx.doi.org/10.1177/15562646221112339
_version_ 1784772425381052416
author Illes, Judy
Lawson, Ashley
McDonald, Patrick J.
author_facet Illes, Judy
Lawson, Ashley
McDonald, Patrick J.
author_sort Illes, Judy
collection PubMed
description We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.
format Online
Article
Text
id pubmed-9398987
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-93989872022-08-26 Ethical Considerations for Discrete Choice Experiments with Caregivers Illes, Judy Lawson, Ashley McDonald, Patrick J. J Empir Res Hum Res Ethics Empirical Studies on Ethical Issues in Special Research Settings We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability. SAGE Publications 2022-07-18 2022-10 /pmc/articles/PMC9398987/ /pubmed/35849082 http://dx.doi.org/10.1177/15562646221112339 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Empirical Studies on Ethical Issues in Special Research Settings
Illes, Judy
Lawson, Ashley
McDonald, Patrick J.
Ethical Considerations for Discrete Choice Experiments with Caregivers
title Ethical Considerations for Discrete Choice Experiments with Caregivers
title_full Ethical Considerations for Discrete Choice Experiments with Caregivers
title_fullStr Ethical Considerations for Discrete Choice Experiments with Caregivers
title_full_unstemmed Ethical Considerations for Discrete Choice Experiments with Caregivers
title_short Ethical Considerations for Discrete Choice Experiments with Caregivers
title_sort ethical considerations for discrete choice experiments with caregivers
topic Empirical Studies on Ethical Issues in Special Research Settings
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9398987/
https://www.ncbi.nlm.nih.gov/pubmed/35849082
http://dx.doi.org/10.1177/15562646221112339
work_keys_str_mv AT illesjudy ethicalconsiderationsfordiscretechoiceexperimentswithcaregivers
AT lawsonashley ethicalconsiderationsfordiscretechoiceexperimentswithcaregivers
AT mcdonaldpatrickj ethicalconsiderationsfordiscretechoiceexperimentswithcaregivers

Ejemplares similares