Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts

INTRODUCTION: Acute hepatic porphyria (AHP) is a family of rare metabolic diseases characterized by potentially life-threatening acute attacks and, in some patients, chronic debilitating symptoms. While patients with frequent or recurrent attacks (three or more attacks annually) are known to have re...

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Detalles Bibliográficos
Autores principales: Wheeden, Kristen, Lyon Howe, Desiree, Burrell, Sue, Gill, Liz, Chamberlayne, John, Williams, Edrin R., Simon, Amy, Ko, John J., Mora, Jordanna, Wells, Ted, Evans, Christopher, Paulich, Maggie, Meninger, Stephen, Lombardelli, Stephen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2022
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9402748/
https://www.ncbi.nlm.nih.gov/pubmed/35907153
http://dx.doi.org/10.1007/s12325-022-02172-8

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