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Use of Netnography to Understand GoFundMe(®) Crowdfunding Profiles Posted for Individuals and Families of Children with Osteogenesis Imperfecta
Osteogenesis imperfecta (OI) is a rare genetic disorder associated with low bone density and increased bone fragility. OI can lead to a variety of supportive and medical care needs; yet financial impacts for families and individuals living with OI remain understudied and largely invisible. Efforts b...
Autores principales: | Tsimicalis, Argerie, Gasse, Michael, Morand, Marilyn, Rauch, Frank |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9407832/ https://www.ncbi.nlm.nih.gov/pubmed/36011107 http://dx.doi.org/10.3390/healthcare10081451 |
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