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Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis

(1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can va...

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Autores principales: Ryder, Courtney, Stephens, Jacqueline H., Ullah, Shahid, Coombes, Julieann, Cominos, Nayia, Sharpe, Patrick, D’Angelo, Shane, Cameron, Darryl, Hayes, Colleen, Bennett-Brook, Keziah, Mackean, Tamara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9407920/
https://www.ncbi.nlm.nih.gov/pubmed/36011989
http://dx.doi.org/10.3390/ijerph191610354
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author Ryder, Courtney
Stephens, Jacqueline H.
Ullah, Shahid
Coombes, Julieann
Cominos, Nayia
Sharpe, Patrick
D’Angelo, Shane
Cameron, Darryl
Hayes, Colleen
Bennett-Brook, Keziah
Mackean, Tamara
author_facet Ryder, Courtney
Stephens, Jacqueline H.
Ullah, Shahid
Coombes, Julieann
Cominos, Nayia
Sharpe, Patrick
D’Angelo, Shane
Cameron, Darryl
Hayes, Colleen
Bennett-Brook, Keziah
Mackean, Tamara
author_sort Ryder, Courtney
collection PubMed
description (1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that underwent psychometric assessment. The Aboriginal and Torres Strait Islander Quality Appraisal Tool and a narrative synthesis approach were used. (3) Results: Of 1080 articles, 14 were eligible for review. Most articles focused on a validity assessment of PROMs and surveys, with reliability being less common. Face validity with Aboriginal and Torres Strait Islander communities was reported in most studies, with construct validity through exploratory factor analyses. Methodological design risks were identified in the majority of studies, notably the absence of explicit Indigenous knowledges. Variability existed in the development of PROMs and surveys for Aboriginal and Torres Strait Islander communities. (4) Conclusions: Improvement in inclusion of Indigenous knowledges and research approaches is needed to ensure relevance and appropriate PROM structures. We provide suggestions for research teams to assist in future design.
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spelling pubmed-94079202022-08-26 Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis Ryder, Courtney Stephens, Jacqueline H. Ullah, Shahid Coombes, Julieann Cominos, Nayia Sharpe, Patrick D’Angelo, Shane Cameron, Darryl Hayes, Colleen Bennett-Brook, Keziah Mackean, Tamara Int J Environ Res Public Health Review (1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that underwent psychometric assessment. The Aboriginal and Torres Strait Islander Quality Appraisal Tool and a narrative synthesis approach were used. (3) Results: Of 1080 articles, 14 were eligible for review. Most articles focused on a validity assessment of PROMs and surveys, with reliability being less common. Face validity with Aboriginal and Torres Strait Islander communities was reported in most studies, with construct validity through exploratory factor analyses. Methodological design risks were identified in the majority of studies, notably the absence of explicit Indigenous knowledges. Variability existed in the development of PROMs and surveys for Aboriginal and Torres Strait Islander communities. (4) Conclusions: Improvement in inclusion of Indigenous knowledges and research approaches is needed to ensure relevance and appropriate PROM structures. We provide suggestions for research teams to assist in future design. MDPI 2022-08-19 /pmc/articles/PMC9407920/ /pubmed/36011989 http://dx.doi.org/10.3390/ijerph191610354 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Review
Ryder, Courtney
Stephens, Jacqueline H.
Ullah, Shahid
Coombes, Julieann
Cominos, Nayia
Sharpe, Patrick
D’Angelo, Shane
Cameron, Darryl
Hayes, Colleen
Bennett-Brook, Keziah
Mackean, Tamara
Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis
title Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis
title_full Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis
title_fullStr Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis
title_full_unstemmed Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis
title_short Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys—A Scoping Review and Critical Analysis
title_sort community engagement and psychometric methods in aboriginal and torres strait islander patient-reported outcome measures and surveys—a scoping review and critical analysis
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9407920/
https://www.ncbi.nlm.nih.gov/pubmed/36011989
http://dx.doi.org/10.3390/ijerph191610354
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