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“No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain

Orofacial pain affects 10–15% of adults, yet treatments are limited. The gaps in care are frustrating for both patients and providers and can negatively impact patient–provider interactions. These interactions are key because they impact patient-reported outcomes and satisfaction with care. Purpose:...

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Autores principales: Grunberg, Victoria A., Reichman, Mira, Lovette, Brenda C., Vranceanu, Ana-Maria, Greenberg, Jonathan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9408497/
https://www.ncbi.nlm.nih.gov/pubmed/36012029
http://dx.doi.org/10.3390/ijerph191610396
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author Grunberg, Victoria A.
Reichman, Mira
Lovette, Brenda C.
Vranceanu, Ana-Maria
Greenberg, Jonathan
author_facet Grunberg, Victoria A.
Reichman, Mira
Lovette, Brenda C.
Vranceanu, Ana-Maria
Greenberg, Jonathan
author_sort Grunberg, Victoria A.
collection PubMed
description Orofacial pain affects 10–15% of adults, yet treatments are limited. The gaps in care are frustrating for both patients and providers and can negatively impact patient–provider interactions. These interactions are key because they impact patient-reported outcomes and satisfaction with care. Purpose: Our study aims to understand the nuanced experiences with medical providers among patients with orofacial pain. Methods: In a cross-sectional survey, 260 patients provided written responses describing their experiences with medical providers. Using an inductive–deductive approach to thematic analysis, we identified themes and subthemes and organized them into four domains based on the Patient-Centered Model of Communication. Results: Patients reported feeling hopeless about treatment options, frustrated with lack of provider knowledge, disappointed in ineffective care, and stigmatized and dismissed by providers. Patients also said they learned to advocate for their health, were grateful for effective care, and felt lucky when providers listened and showed compassion. Patients identified key barriers that interfere with care (e.g., insurance, transportation, limited providers, lack of team coordination). Conclusions: Findings can help inform training programs and psychoeducation that target patient–provider communication to improve patient-reported outcomes, the quality of care delivered, and health care utilization and costs.
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spelling pubmed-94084972022-08-26 “No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain Grunberg, Victoria A. Reichman, Mira Lovette, Brenda C. Vranceanu, Ana-Maria Greenberg, Jonathan Int J Environ Res Public Health Article Orofacial pain affects 10–15% of adults, yet treatments are limited. The gaps in care are frustrating for both patients and providers and can negatively impact patient–provider interactions. These interactions are key because they impact patient-reported outcomes and satisfaction with care. Purpose: Our study aims to understand the nuanced experiences with medical providers among patients with orofacial pain. Methods: In a cross-sectional survey, 260 patients provided written responses describing their experiences with medical providers. Using an inductive–deductive approach to thematic analysis, we identified themes and subthemes and organized them into four domains based on the Patient-Centered Model of Communication. Results: Patients reported feeling hopeless about treatment options, frustrated with lack of provider knowledge, disappointed in ineffective care, and stigmatized and dismissed by providers. Patients also said they learned to advocate for their health, were grateful for effective care, and felt lucky when providers listened and showed compassion. Patients identified key barriers that interfere with care (e.g., insurance, transportation, limited providers, lack of team coordination). Conclusions: Findings can help inform training programs and psychoeducation that target patient–provider communication to improve patient-reported outcomes, the quality of care delivered, and health care utilization and costs. MDPI 2022-08-20 /pmc/articles/PMC9408497/ /pubmed/36012029 http://dx.doi.org/10.3390/ijerph191610396 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Grunberg, Victoria A.
Reichman, Mira
Lovette, Brenda C.
Vranceanu, Ana-Maria
Greenberg, Jonathan
“No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain
title “No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain
title_full “No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain
title_fullStr “No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain
title_full_unstemmed “No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain
title_short “No One Truly Understands What We Go through and How to Treat It”: Lived Experiences with Medical Providers among Patients with Orofacial Pain
title_sort “no one truly understands what we go through and how to treat it”: lived experiences with medical providers among patients with orofacial pain
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9408497/
https://www.ncbi.nlm.nih.gov/pubmed/36012029
http://dx.doi.org/10.3390/ijerph191610396
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