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Rare Diseases: Needs and Impact for Patients and Families: A Cross-Sectional Study in the Valencian Region, Spain

Families with rare diseases (RDs) have unmet needs that are often overlooked by health professionals. Describing these needs and the impact of the disease could improve their medical care. A total of 163 surveys were obtained from patients visiting primary care centres in the Valencian Region (Spain...

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Detalles Bibliográficos
Autores principales:	Gimenez-Lozano, Cristina, Páramo-Rodríguez, Lucía, Cavero-Carbonell, Clara, Corpas-Burgos, Francisca, López-Maside, Aurora, Guardiola-Vilarroig, Sandra, Zurriaga, Oscar
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2022
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9408677/ https://www.ncbi.nlm.nih.gov/pubmed/36012000 http://dx.doi.org/10.3390/ijerph191610366

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