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Outcomes of Importance to Patients in Reproductive Genetic Carrier Screening: A Qualitative Study to Inform a Core Outcome Set

There is significant heterogeneity in the outcomes assessed across studies of reproductive genetic carrier screening (RGCS). Only a small number of studies have measured patient-reported outcomes or included patients in the selection of outcomes that are meaningful to them. This study was a cross-se...

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Detalles Bibliográficos
Autores principales: Richardson, Ebony, McEwen, Alison, Newton-John, Toby, Crook, Ashley, Jacobs, Chris
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9409855/
https://www.ncbi.nlm.nih.gov/pubmed/36013258
http://dx.doi.org/10.3390/jpm12081310