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Outcomes of Importance to Patients in Reproductive Genetic Carrier Screening: A Qualitative Study to Inform a Core Outcome Set
There is significant heterogeneity in the outcomes assessed across studies of reproductive genetic carrier screening (RGCS). Only a small number of studies have measured patient-reported outcomes or included patients in the selection of outcomes that are meaningful to them. This study was a cross-se...
Autores principales: | Richardson, Ebony, McEwen, Alison, Newton-John, Toby, Crook, Ashley, Jacobs, Chris |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9409855/ https://www.ncbi.nlm.nih.gov/pubmed/36013258 http://dx.doi.org/10.3390/jpm12081310 |
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