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Digital hermeneutics: scaled readings of online depression discourses

When it comes to understanding experiences of illness, humanities and social sciences research have traditionally reserved a prominent role for narrative. Yet, depression has characteristics that withstand the form of traditional narratives, such as a lack of desire and an impotence to act. How can...

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Autores principales: van de Ven, Inge, van Nuenen, Tom
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9411883/
https://www.ncbi.nlm.nih.gov/pubmed/34649932
http://dx.doi.org/10.1136/medhum-2020-012104
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author van de Ven, Inge
van Nuenen, Tom
author_facet van de Ven, Inge
van Nuenen, Tom
author_sort van de Ven, Inge
collection PubMed
description When it comes to understanding experiences of illness, humanities and social sciences research have traditionally reserved a prominent role for narrative. Yet, depression has characteristics that withstand the form of traditional narratives, such as a lack of desire and an impotence to act. How can a ‘datafied’ approach to online forms of depression writing pose a valuable addition to existing narrative approaches in health humanities? In this article, we analyse lay people’s depression discourses online. Our approach, ‘digital hermeneutics’, is inspired by Gadamer’s dialogical hermeneutics. It consists of a ‘scaled reading’ on five different scales: platform hermeneutics; contextual reading with term frequency—inverse document frequency (TF–IDF); distant reading with natural language processing topic modelling; hyper-reading with concordance views and close reading. Our corpus consisted of three data sets, from the blogs and message boards of, respectively, time-to-change.org.uk, a UK-based social organisation and movement that aims to counter mental health discrimination and alleviate social isolation by spreading awareness; Sane.org.uk, a leading UK mental health charity that seeks to help people in facing the challenges of mental illness and to improve quality of life; and the subreddit ‘r/depression’ on web discussion platform reddit. We found that the manner in which people express experiences of illness online is very much dependent on the specific affordances of platforms. We found degrees of ‘narrativity’ to be correlated to authorship and identity markers: the less ‘anonymous’ the writing, generally speaking, the more conventionally ‘narrative’ it was. Pseudonimity was related to more intimate and singular forms, with less pressure to conform to socially accepted and positive narratives of the ‘restitution’ type. We also found that interactive affordances of the platforms were used to a limited extent, nuancing assumptions about the polyvocality of online depression writing. We conclude by making a claim for increased cooperation between digital and medical humanities that might lead to a field of ‘Digital Medical Humanities’.
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spelling pubmed-94118832022-09-12 Digital hermeneutics: scaled readings of online depression discourses van de Ven, Inge van Nuenen, Tom Med Humanit Original Research When it comes to understanding experiences of illness, humanities and social sciences research have traditionally reserved a prominent role for narrative. Yet, depression has characteristics that withstand the form of traditional narratives, such as a lack of desire and an impotence to act. How can a ‘datafied’ approach to online forms of depression writing pose a valuable addition to existing narrative approaches in health humanities? In this article, we analyse lay people’s depression discourses online. Our approach, ‘digital hermeneutics’, is inspired by Gadamer’s dialogical hermeneutics. It consists of a ‘scaled reading’ on five different scales: platform hermeneutics; contextual reading with term frequency—inverse document frequency (TF–IDF); distant reading with natural language processing topic modelling; hyper-reading with concordance views and close reading. Our corpus consisted of three data sets, from the blogs and message boards of, respectively, time-to-change.org.uk, a UK-based social organisation and movement that aims to counter mental health discrimination and alleviate social isolation by spreading awareness; Sane.org.uk, a leading UK mental health charity that seeks to help people in facing the challenges of mental illness and to improve quality of life; and the subreddit ‘r/depression’ on web discussion platform reddit. We found that the manner in which people express experiences of illness online is very much dependent on the specific affordances of platforms. We found degrees of ‘narrativity’ to be correlated to authorship and identity markers: the less ‘anonymous’ the writing, generally speaking, the more conventionally ‘narrative’ it was. Pseudonimity was related to more intimate and singular forms, with less pressure to conform to socially accepted and positive narratives of the ‘restitution’ type. We also found that interactive affordances of the platforms were used to a limited extent, nuancing assumptions about the polyvocality of online depression writing. We conclude by making a claim for increased cooperation between digital and medical humanities that might lead to a field of ‘Digital Medical Humanities’. BMJ Publishing Group 2022-09 2021-10-14 /pmc/articles/PMC9411883/ /pubmed/34649932 http://dx.doi.org/10.1136/medhum-2020-012104 Text en © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Original Research
van de Ven, Inge
van Nuenen, Tom
Digital hermeneutics: scaled readings of online depression discourses
title Digital hermeneutics: scaled readings of online depression discourses
title_full Digital hermeneutics: scaled readings of online depression discourses
title_fullStr Digital hermeneutics: scaled readings of online depression discourses
title_full_unstemmed Digital hermeneutics: scaled readings of online depression discourses
title_short Digital hermeneutics: scaled readings of online depression discourses
title_sort digital hermeneutics: scaled readings of online depression discourses
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9411883/
https://www.ncbi.nlm.nih.gov/pubmed/34649932
http://dx.doi.org/10.1136/medhum-2020-012104
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