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Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific q...
Autores principales: | , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Society for Publication of Acta Dermato-Venereologica
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413661/ https://www.ncbi.nlm.nih.gov/pubmed/34427316 http://dx.doi.org/10.2340/00015555-3905 |
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author | MARRON, Servando E. GOMEZ-BARRERA, Manuel TOMAS-ARAGONES, Lucía GONI-NAVARRO, Ana VILARRASA-RULL, Eva DIAZ-DIAZ, Rosa María GARCIA-LATASA DE ARANIBAR, Francisco Javier CAMPOS-RODENAS, Ricardo FUENTELSAZ-DEL-BARRIO, Victoria GILABERTE-CALZADA, Yolanda GRACIA-CAZAÑA, Tamara MORALES-CALLAGHAN, Ana María ROS-ABARCA, Sandra MADRID-ALVAREZ, María Blanca PUIG, Luis |
author_facet | MARRON, Servando E. GOMEZ-BARRERA, Manuel TOMAS-ARAGONES, Lucía GONI-NAVARRO, Ana VILARRASA-RULL, Eva DIAZ-DIAZ, Rosa María GARCIA-LATASA DE ARANIBAR, Francisco Javier CAMPOS-RODENAS, Ricardo FUENTELSAZ-DEL-BARRIO, Victoria GILABERTE-CALZADA, Yolanda GRACIA-CAZAÑA, Tamara MORALES-CALLAGHAN, Ana María ROS-ABARCA, Sandra MADRID-ALVAREZ, María Blanca PUIG, Luis |
author_sort | MARRON, Servando E. |
collection | PubMed |
description | To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients. |
format | Online Article Text |
id | pubmed-9413661 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Society for Publication of Acta Dermato-Venereologica |
record_format | MEDLINE/PubMed |
spelling | pubmed-94136612022-10-20 Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 MARRON, Servando E. GOMEZ-BARRERA, Manuel TOMAS-ARAGONES, Lucía GONI-NAVARRO, Ana VILARRASA-RULL, Eva DIAZ-DIAZ, Rosa María GARCIA-LATASA DE ARANIBAR, Francisco Javier CAMPOS-RODENAS, Ricardo FUENTELSAZ-DEL-BARRIO, Victoria GILABERTE-CALZADA, Yolanda GRACIA-CAZAÑA, Tamara MORALES-CALLAGHAN, Ana María ROS-ABARCA, Sandra MADRID-ALVAREZ, María Blanca PUIG, Luis Acta Derm Venereol Clinical Report To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients. Society for Publication of Acta Dermato-Venereologica 2021-08-25 /pmc/articles/PMC9413661/ /pubmed/34427316 http://dx.doi.org/10.2340/00015555-3905 Text en © 2021 Acta Dermato-Venereologica https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the CC BY-NC license |
spellingShingle | Clinical Report MARRON, Servando E. GOMEZ-BARRERA, Manuel TOMAS-ARAGONES, Lucía GONI-NAVARRO, Ana VILARRASA-RULL, Eva DIAZ-DIAZ, Rosa María GARCIA-LATASA DE ARANIBAR, Francisco Javier CAMPOS-RODENAS, Ricardo FUENTELSAZ-DEL-BARRIO, Victoria GILABERTE-CALZADA, Yolanda GRACIA-CAZAÑA, Tamara MORALES-CALLAGHAN, Ana María ROS-ABARCA, Sandra MADRID-ALVAREZ, María Blanca PUIG, Luis Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 |
title | Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 |
title_full | Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 |
title_fullStr | Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 |
title_full_unstemmed | Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 |
title_short | Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 |
title_sort | quality of life in hidradenitis suppurativa: validation of the hsqol-24 |
topic | Clinical Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413661/ https://www.ncbi.nlm.nih.gov/pubmed/34427316 http://dx.doi.org/10.2340/00015555-3905 |
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