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Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific q...

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Autores principales: MARRON, Servando E., GOMEZ-BARRERA, Manuel, TOMAS-ARAGONES, Lucía, GONI-NAVARRO, Ana, VILARRASA-RULL, Eva, DIAZ-DIAZ, Rosa María, GARCIA-LATASA DE ARANIBAR, Francisco Javier, CAMPOS-RODENAS, Ricardo, FUENTELSAZ-DEL-BARRIO, Victoria, GILABERTE-CALZADA, Yolanda, GRACIA-CAZAÑA, Tamara, MORALES-CALLAGHAN, Ana María, ROS-ABARCA, Sandra, MADRID-ALVAREZ, María Blanca, PUIG, Luis
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Society for Publication of Acta Dermato-Venereologica 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413661/
https://www.ncbi.nlm.nih.gov/pubmed/34427316
http://dx.doi.org/10.2340/00015555-3905
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author MARRON, Servando E.
GOMEZ-BARRERA, Manuel
TOMAS-ARAGONES, Lucía
GONI-NAVARRO, Ana
VILARRASA-RULL, Eva
DIAZ-DIAZ, Rosa María
GARCIA-LATASA DE ARANIBAR, Francisco Javier
CAMPOS-RODENAS, Ricardo
FUENTELSAZ-DEL-BARRIO, Victoria
GILABERTE-CALZADA, Yolanda
GRACIA-CAZAÑA, Tamara
MORALES-CALLAGHAN, Ana María
ROS-ABARCA, Sandra
MADRID-ALVAREZ, María Blanca
PUIG, Luis
author_facet MARRON, Servando E.
GOMEZ-BARRERA, Manuel
TOMAS-ARAGONES, Lucía
GONI-NAVARRO, Ana
VILARRASA-RULL, Eva
DIAZ-DIAZ, Rosa María
GARCIA-LATASA DE ARANIBAR, Francisco Javier
CAMPOS-RODENAS, Ricardo
FUENTELSAZ-DEL-BARRIO, Victoria
GILABERTE-CALZADA, Yolanda
GRACIA-CAZAÑA, Tamara
MORALES-CALLAGHAN, Ana María
ROS-ABARCA, Sandra
MADRID-ALVAREZ, María Blanca
PUIG, Luis
author_sort MARRON, Servando E.
collection PubMed
description To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients.
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spelling pubmed-94136612022-10-20 Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24 MARRON, Servando E. GOMEZ-BARRERA, Manuel TOMAS-ARAGONES, Lucía GONI-NAVARRO, Ana VILARRASA-RULL, Eva DIAZ-DIAZ, Rosa María GARCIA-LATASA DE ARANIBAR, Francisco Javier CAMPOS-RODENAS, Ricardo FUENTELSAZ-DEL-BARRIO, Victoria GILABERTE-CALZADA, Yolanda GRACIA-CAZAÑA, Tamara MORALES-CALLAGHAN, Ana María ROS-ABARCA, Sandra MADRID-ALVAREZ, María Blanca PUIG, Luis Acta Derm Venereol Clinical Report To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients. Society for Publication of Acta Dermato-Venereologica 2021-08-25 /pmc/articles/PMC9413661/ /pubmed/34427316 http://dx.doi.org/10.2340/00015555-3905 Text en © 2021 Acta Dermato-Venereologica https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the CC BY-NC license
spellingShingle Clinical Report
MARRON, Servando E.
GOMEZ-BARRERA, Manuel
TOMAS-ARAGONES, Lucía
GONI-NAVARRO, Ana
VILARRASA-RULL, Eva
DIAZ-DIAZ, Rosa María
GARCIA-LATASA DE ARANIBAR, Francisco Javier
CAMPOS-RODENAS, Ricardo
FUENTELSAZ-DEL-BARRIO, Victoria
GILABERTE-CALZADA, Yolanda
GRACIA-CAZAÑA, Tamara
MORALES-CALLAGHAN, Ana María
ROS-ABARCA, Sandra
MADRID-ALVAREZ, María Blanca
PUIG, Luis
Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
title Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
title_full Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
title_fullStr Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
title_full_unstemmed Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
title_short Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24
title_sort quality of life in hidradenitis suppurativa: validation of the hsqol-24
topic Clinical Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413661/
https://www.ncbi.nlm.nih.gov/pubmed/34427316
http://dx.doi.org/10.2340/00015555-3905
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