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Influence of Port-wine Stains on Quality of Life of Children and Their Parents
Port-wine stains are congenital vascular malformations that affect the quality of life of children and their parents. This study used the Family Dermatology Life Quality Index and Children’s Dermatology Life Quality Index to examine the effects of port-wine stains on the quality of life of children...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Society for Publication of Acta Dermato-Venereologica
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413813/ https://www.ncbi.nlm.nih.gov/pubmed/34263327 http://dx.doi.org/10.2340/00015555-3883 |
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author | JIANG, Fan SHAO, Junyi CHEN, Lele YANG, Nali LIU, Jingjing LI, Zhiming |
author_facet | JIANG, Fan SHAO, Junyi CHEN, Lele YANG, Nali LIU, Jingjing LI, Zhiming |
author_sort | JIANG, Fan |
collection | PubMed |
description | Port-wine stains are congenital vascular malformations that affect the quality of life of children and their parents. This study used the Family Dermatology Life Quality Index and Children’s Dermatology Life Quality Index to examine the effects of port-wine stains on the quality of life of children and their parents, including an in-depth, systematic analysis of the moderating effects of the children’s sex and port-wine stain classification. The study included 43 children (25 girls and 18 boys) and their parents. The presence of a port-wine stain had a significantly greater impact on the quality of life of mothers than on that of fathers (p < 0.001). Port-wine stains in girls had a greater effect on paternal quality of life than did port-wine stains in boys (girls p < 0.01; boys p = 0.542). Severe types of port-wine stains exerted a greater impact on maternal quality of life (pink-red type, dark-red type, and purple-dark type: p < 0.001, p = 0.948 and p = 0.086, respectively). Therefore, clinicians should consider familial relationships and differences when offering psychological support. |
format | Online Article Text |
id | pubmed-9413813 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Society for Publication of Acta Dermato-Venereologica |
record_format | MEDLINE/PubMed |
spelling | pubmed-94138132022-10-20 Influence of Port-wine Stains on Quality of Life of Children and Their Parents JIANG, Fan SHAO, Junyi CHEN, Lele YANG, Nali LIU, Jingjing LI, Zhiming Acta Derm Venereol Clinical Report Port-wine stains are congenital vascular malformations that affect the quality of life of children and their parents. This study used the Family Dermatology Life Quality Index and Children’s Dermatology Life Quality Index to examine the effects of port-wine stains on the quality of life of children and their parents, including an in-depth, systematic analysis of the moderating effects of the children’s sex and port-wine stain classification. The study included 43 children (25 girls and 18 boys) and their parents. The presence of a port-wine stain had a significantly greater impact on the quality of life of mothers than on that of fathers (p < 0.001). Port-wine stains in girls had a greater effect on paternal quality of life than did port-wine stains in boys (girls p < 0.01; boys p = 0.542). Severe types of port-wine stains exerted a greater impact on maternal quality of life (pink-red type, dark-red type, and purple-dark type: p < 0.001, p = 0.948 and p = 0.086, respectively). Therefore, clinicians should consider familial relationships and differences when offering psychological support. Society for Publication of Acta Dermato-Venereologica 2021-08-16 /pmc/articles/PMC9413813/ /pubmed/34263327 http://dx.doi.org/10.2340/00015555-3883 Text en © 2021 Acta Dermato-Venereologica https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the CC BY-NC license |
spellingShingle | Clinical Report JIANG, Fan SHAO, Junyi CHEN, Lele YANG, Nali LIU, Jingjing LI, Zhiming Influence of Port-wine Stains on Quality of Life of Children and Their Parents |
title | Influence of Port-wine Stains on Quality of Life of Children and Their Parents |
title_full | Influence of Port-wine Stains on Quality of Life of Children and Their Parents |
title_fullStr | Influence of Port-wine Stains on Quality of Life of Children and Their Parents |
title_full_unstemmed | Influence of Port-wine Stains on Quality of Life of Children and Their Parents |
title_short | Influence of Port-wine Stains on Quality of Life of Children and Their Parents |
title_sort | influence of port-wine stains on quality of life of children and their parents |
topic | Clinical Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413813/ https://www.ncbi.nlm.nih.gov/pubmed/34263327 http://dx.doi.org/10.2340/00015555-3883 |
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