Cargando…

Perspectives and experiences of researchers regarding feedback of incidental genomic research findings: A qualitative study

BACKGROUND: There is a plethora of unanswered ethical questions about sharing incidental findings in genetics and genomics research. Yet understanding and addressing such issues is necessary for communicating incidental findings with participants. We explored researchers’ perspectives and experience...

Descripción completa

Detalles Bibliográficos
Autores principales:	Ochieng, Joseph, Kwagala, Betty, Barugahare, John, Mwaka, Erisa, Ekusai-Sebatta, Deborah, Ali, Joseph, Sewankambo, Nelson K.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2022
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9423610/ https://www.ncbi.nlm.nih.gov/pubmed/36037169 http://dx.doi.org/10.1371/journal.pone.0273657

Ejemplares similares

Perspectives and ethical considerations for return of genetics and genomics research results: a qualitative study of genomics researchers in Uganda
por: Ochieng, Joseph, et al.
Publicado: (2021)

A scoping review of genetics and genomics research ethics policies and guidelines for Africa
por: Ali, Joseph, et al.
Publicado: (2021)

Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study
por: Mwaka, Erisa Sabakaki, et al.
Publicado: (2021)

Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study
por: Nabukenya, Sylvia, et al.
Publicado: (2022)

Feedback of individual genetic and genomics research results: A qualitative study involving grassroots communities in Uganda
por: Ochieng, Joseph, et al.
Publicado: (2022)

Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members
por: Mwaka, Erisa Sabakaki, et al.
Publicado: (2022)

Collection and use of human materials during TB clinical research; a review of practices
por: Ochieng, Joseph, et al.
Publicado: (2022)

Ethical and human rights considerations in public health in low and middle-income countries: an assessment using the case of Uganda’s responses to COVID-19 pandemic
por: Barugahare, John, et al.
Publicado: (2020)

Data sharing practices in collaborative human genomic research in low- and middle-income countries: A systematic review protocol
por: Ekusai-Sebatta, Deborah, et al.
Publicado: (2023)

An implementation framework for the feedback of individual research results and incidental findings in research
por: Thorogood, Adrian, et al.
Publicado: (2014)

Considerations of Autonomy in Guiding Decisions around the Feedback of Individual Genetic Research Results from Genomics Research: Expectations of and Preferences from Researchers in Botswana
por: Kasule, Mary, et al.
Publicado: (2022)

Viewpoint: Antimicrobial Resistance Diagnostics Use Accelerator: Qualitative Research on Adherence to Prescriptions
por: Compaoré, Adélaïde, et al.
Publicado: (2023)

Students’ perspectives of undergraduate research methods education at three public medical schools in Uganda
por: Munabi, Ian Guyton, et al.
Publicado: (2016)

Informed consent in clinical practice: patients’ experiences and perspectives following surgery
por: Ochieng, Joseph, et al.
Publicado: (2015)

Informed consent process for emergency surgery: A scoping review of stakeholders’ perspectives, challenges, ethical concepts, and policies
por: Kituuka, Olivia, et al.
Publicado: (2023)

“You would not be in a hurry to go back home”: patients’ willingness to participate in HIV/AIDS clinical trials at a clinical and research facility in Kampala, Uganda
por: Sebatta, Deborah Ekusai, et al.
Publicado: (2020)

Musculoskeletal pain and school bag use: a cross-sectional study among Ugandan pupils
por: Mwaka, Erisa S, et al.
Publicado: (2014)

Musculoskeletal disorder risk factors among nursing professionals in low resource settings: a cross-sectional study in Uganda
por: Munabi, Ian G, et al.
Publicado: (2014)

Challenges and opportunities for use of long-lasting insecticidal nets to prevent malaria during overnight travel in Uganda: a qualitative study
por: Ekusai-Sebatta, Deborah, et al.
Publicado: (2021)

IRB perspectives on obligations to disclose genetic incidental findings to research participants
por: Gliwa, Catherine, et al.
Publicado: (2015)

Incidental Findings in Study Participants: What Is the Researcher’s Obligation?
por: Schaare, Donna, et al.
Publicado: (2022)

GBA/GBN-position on the feedback of incidental findings in biobank-based research: consensus-based workflow for hospital-based biobanks
por: Geiger, Joerg, et al.
Publicado: (2023)

Musculoskeletal disorders among nursing staff: a comparison of five hospitals in Uganda
por: Munabi, Ian Guyton, et al.
Publicado: (2014)

Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research
por: Souzeau, Emmanuelle, et al.
Publicado: (2016)

Funding considerations for the disclosure of genetic incidental findings in biobank research
por: Black, L, et al.
Publicado: (2013)

Managing “incidental findings” in biobank research: Recommendations of the Taiwan biobank
por: Lin, Jui-Chu, et al.
Publicado: (2019)

A Systematic Review of the Management of Incidental Findings in Genomic Research
por: Ewuoso, Cornelius
Publicado: (2016)

A Framework to Ethically Approach Incidental Findings in Genetic Research
por: Beshir, Lamis
Publicado: (2020)

Managing community engagement in research in Uganda: insights from practices in HIV/AIDS research
por: Barugahare, John, et al.
Publicado: (2022)

Empowering local research ethics review of antibacterial mass administration research
por: Sewankambo, Nelson K., et al.
Publicado: (2022)

Guideline for feedback of individual genetic research findings for genomics research in Africa
por: Matimba, Alice, et al.
Publicado: (2022)

Informed consent practices for surgical care at university teaching hospitals: a case in a low resource setting
por: Ochieng, Joseph, et al.
Publicado: (2014)

A Qualitative Assessment of a Training and Communication Intervention on Antibiotic Prescription Practices Among Health Workers and Outpatients at Public Health Facilities in Uganda
por: Kaawa-Mafigiri, David, et al.
Publicado: (2023)

Population studies: return of research results and incidental findings Policy Statement
por: Knoppers, Bartha Maria, et al.
Publicado: (2013)

Incidental pharmacogenetics findings in an HLA‐related research: Considerations for primary prevention
por: Bakhtiar, Mohammed Faizal, et al.
Publicado: (2019)

Systematic Review of the Economic Evaluation of Returning Incidental Findings in Genomic Research
por: Fontes Marx, Mayara, et al.
Publicado: (2021)

Stakeholders’ perceptions regarding a salt reduction strategy for India: Findings from qualitative research
por: Gupta, Priti, et al.
Publicado: (2018)

Incidental findings on whole‐body computed tomography in trauma patients: the current state of incidental findings and the effect of implementation of a feedback system
por: Kumada, Keisuke, et al.
Publicado: (2019)

Research participant interest in primary, secondary and incidental genomic findings: Intentions to receive genomic research results
por: Loud, Jennifer T., et al.
Publicado: (2016)

A Just Standard: The Ethical Management of Incidental Findings in Brain Imaging Research
por: Graham, Mackenzie, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_nkqvmqb6dnbe4v5a59r0obhpi9