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Patient-Reported Outcome Measures in Dermatology: A Systematic Review

By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients’ lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes ev...

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Autores principales: PATTINSON, Rachael L., TRIALONIS-SUTHAKHARAN, Nirohshah, GUPTA, Sunnia, HENRY, Alasdair L., LAVALLÉE, Jacqueline F., OTTEN, Marina, PICKLES, Timothy, COURTIER, Nick, AUSTIN, Jennifer, JANUS, Christine, AUGUSTIN, Matthias, BUNDY, Chris
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Society for Publication of Acta Dermato-Venereologica 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9425604/
https://www.ncbi.nlm.nih.gov/pubmed/34263330
http://dx.doi.org/10.2340/00015555-3884
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author PATTINSON, Rachael L.
TRIALONIS-SUTHAKHARAN, Nirohshah
GUPTA, Sunnia
HENRY, Alasdair L.
LAVALLÉE, Jacqueline F.
OTTEN, Marina
PICKLES, Timothy
COURTIER, Nick
AUSTIN, Jennifer
JANUS, Christine
AUGUSTIN, Matthias
BUNDY, Chris
author_facet PATTINSON, Rachael L.
TRIALONIS-SUTHAKHARAN, Nirohshah
GUPTA, Sunnia
HENRY, Alasdair L.
LAVALLÉE, Jacqueline F.
OTTEN, Marina
PICKLES, Timothy
COURTIER, Nick
AUSTIN, Jennifer
JANUS, Christine
AUGUSTIN, Matthias
BUNDY, Chris
author_sort PATTINSON, Rachael L.
collection PubMed
description By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients’ lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient’s life is needed.
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spelling pubmed-94256042022-10-20 Patient-Reported Outcome Measures in Dermatology: A Systematic Review PATTINSON, Rachael L. TRIALONIS-SUTHAKHARAN, Nirohshah GUPTA, Sunnia HENRY, Alasdair L. LAVALLÉE, Jacqueline F. OTTEN, Marina PICKLES, Timothy COURTIER, Nick AUSTIN, Jennifer JANUS, Christine AUGUSTIN, Matthias BUNDY, Chris Acta Derm Venereol Review Article By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients’ lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient’s life is needed. Society for Publication of Acta Dermato-Venereologica 2021-09-28 /pmc/articles/PMC9425604/ /pubmed/34263330 http://dx.doi.org/10.2340/00015555-3884 Text en © 2021 Acta Dermato-Venereologica https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the CC BY-NC license
spellingShingle Review Article
PATTINSON, Rachael L.
TRIALONIS-SUTHAKHARAN, Nirohshah
GUPTA, Sunnia
HENRY, Alasdair L.
LAVALLÉE, Jacqueline F.
OTTEN, Marina
PICKLES, Timothy
COURTIER, Nick
AUSTIN, Jennifer
JANUS, Christine
AUGUSTIN, Matthias
BUNDY, Chris
Patient-Reported Outcome Measures in Dermatology: A Systematic Review
title Patient-Reported Outcome Measures in Dermatology: A Systematic Review
title_full Patient-Reported Outcome Measures in Dermatology: A Systematic Review
title_fullStr Patient-Reported Outcome Measures in Dermatology: A Systematic Review
title_full_unstemmed Patient-Reported Outcome Measures in Dermatology: A Systematic Review
title_short Patient-Reported Outcome Measures in Dermatology: A Systematic Review
title_sort patient-reported outcome measures in dermatology: a systematic review
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9425604/
https://www.ncbi.nlm.nih.gov/pubmed/34263330
http://dx.doi.org/10.2340/00015555-3884
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