Quality of life and symptom burden in children with neurodegenerative diseases: using PedsQL and SProND, a new symptom-based scale

BACKGROUND: Children with neurodegenerative conditions (CNDC) often suffer from severe neurodisability and high symptom burden with multisystemic involvement. However, their symptom burden and health-related quality of life (HRQOL) is not systematically documented in the literature, and there is no...

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Detalles Bibliográficos
Autores principales: Chiu, Annie Ting Gee, Wong, Sheila Suet Na, Wong, Naomi Wing Tung, Wong, Wilfred Hing Sang, Tso, Winnie Wan Yee, Fung, Cheuk Wing
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9437405/
https://www.ncbi.nlm.nih.gov/pubmed/36056400
http://dx.doi.org/10.1186/s13023-022-02485-5

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