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Needs of people with rare diseases that can be supported by electronic resources: a scoping review

OBJECTIVES: Rare diseases are characterised by low incidence, often with little evidence for effective treatments. Isolated patients and specialist centres for rare diseases are increasingly connected, thanks to the internet. This scoping review aimed to identify issues facing people with a rare dis...

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Detalles Bibliográficos
Autores principales:	Long, Janet C, Best, Stephanie, Nic Giolla Easpaig, Bróna, Hatem, Sarah, Fehlberg, Zoe, Christodoulou, John, Braithwaite, Jeffrey
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2022
Materias:	Health Services Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9438091/ https://www.ncbi.nlm.nih.gov/pubmed/36581982 http://dx.doi.org/10.1136/bmjopen-2021-060394

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