Cargando…

Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease

Purpose: Despite recent attention to increasing diversity in clinical genomics research, researchers still struggle to recruit participants from varied sociodemographic backgrounds. We examined the experiences of parents from diverse backgrounds with enrolling their children in clinical genomics res...

Descripción completa

Detalles Bibliográficos
Autores principales:	Young, Jennifer L., Halley, Meghan C., Anguiano, Beatriz, Fernandez, Liliana, Bernstein, Jonathan A., Wheeler, Matthew T., Tabor, Holly K.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2022
Materias:	Genetics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441547/ https://www.ncbi.nlm.nih.gov/pubmed/36072659 http://dx.doi.org/10.3389/fgene.2022.949422

Ejemplares similares

“It seems like COVID-19 now is the only disease present on Earth”: living with a rare or undiagnosed disease during the COVID-19 pandemic
por: Halley, Meghan C., et al.
Publicado: (2021)

Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study
por: Yabumoto, Megan, et al.
Publicado: (2022)

Barriers in participant recruitment of diverse ethnicities in the state of Kuwait
por: Tariq, Sufia, et al.
Publicado: (2013)

Diversity in optical coherence tomography normative databases: moving beyond race
por: Mehta, Nihaal, et al.
Publicado: (2020)

Recent advances in hidradenitis suppurativa: Role of race, genetics, and immunology
por: Vellaichamy, Gautham, et al.
Publicado: (2022)

Participation in genetic screening: testing different outreach methods across a diverse hospital system based patient population
por: Dickey, Lindsay, et al.
Publicado: (2023)

Beyond the Coral Triangle: high genetic diversity and near panmixia in Singapore's populations of the broadcast spawning sea star Protoreaster nodosus
por: Tay, Y. C., et al.
Publicado: (2016)

ONECUT1 variants beyond type 1 and type 2 diabetes: exploring clinical diversity and epigenetic associations in Arab cohorts
por: Dashti, Mohammed, et al.
Publicado: (2023)

Recruiting Eligible and Interested Study Participants With Cognitive Impairment
por: Mattos, Meghan, et al.
Publicado: (2021)

Genomic Diversity Evaluation of Populus trichocarpa Germplasm for Rare Variant Genetic Association Studies
por: Piot, Anthony, et al.
Publicado: (2020)

Recruiting Participants for Population Health Intervention Research: Effectiveness and Costs of Recruitment Methods for a Cohort Study
por: Wasfi, Rania, et al.
Publicado: (2021)

A Polygenic Score for Type 2 Diabetes Improves Risk Stratification Beyond Current Clinical Screening Factors in an Ancestrally Diverse Sample
por: Ashenhurst, James R., et al.
Publicado: (2022)

Population Genomics and the Statistical Values of Race: An Interdisciplinary Perspective on the Biological Classification of Human Populations and Implications for Clinical Genetic Epidemiological Research
por: Maglo, Koffi N., et al.
Publicado: (2016)

Replication of GWAS “Hits” by Race for Breast and Prostate Cancers in European Americans and African Americans
por: Barnholtz-Sloan, Jill S., et al.
Publicado: (2011)

The Effect of Maternal Race, Ethnicity, and Nativity on Macrosomia Among Infants Born in the United States
por: Mydam, Janardhan, et al.
Publicado: (2023)

2520: Participant recruitment program at the University of Michigan CTSA
por: Spiroff, Meghan, et al.
Publicado: (2018)

Editorial: The Importance of Diversity in Precision Medicine Research
por: Cooke Bailey, Jessica N., et al.
Publicado: (2020)

Deducing the Role of Virus Genome-Derived PIWI-Associated RNAs in the Mosquito–Arbovirus Arms Race
por: Blair, Carol D.
Publicado: (2019)

Motivations for Participation in Parkinson Disease Genetic Research Among Hispanics versus Non-Hispanics
por: Nuytemans, Karen, et al.
Publicado: (2019)

Addressing the gap for racially diverse research involvement: The King's Model for minority ethnic research participant recruitment()
por: Ray Chaudhuri, K., et al.
Publicado: (2023)

Record Participation in the Relay Race!
Publicado: (2002)

Participate in the CERN Relay Race!
Publicado: (2012)

Inbreeding depression and the probability of racing in the Thoroughbred horse
por: Hill, Emmeline W., et al.
Publicado: (2022)

Angiotensin-Converting Enzyme Related-Polymorphisms on Inflammation, Muscle and Myocardial Damage After a Marathon Race
por: Sierra, Ana Paula Rennó, et al.
Publicado: (2019)

Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network
por: Blasimme, Alessandro, et al.
Publicado: (2020)

Recruitment of an Activated Gene to the Yeast Nuclear Pore Complex Requires Sumoylation
por: Saik, Natasha O., et al.
Publicado: (2020)

Editorial: Fetal phenotypes of rare diseases: application and evaluation of prenatal exome sequencing and pathogenesis research of rare diseases
por: Zhang, Yan, et al.
Publicado: (2023)

Optimal Management of Genetic Diversity in Subdivided Populations
por: López-Cortegano, Eugenio, et al.
Publicado: (2019)

Identification of QTLs/Defense Genes Effective at Seedling Stage Against Prevailing Races of Wheat Stripe Rust in India
por: Pradhan, Anjan Kumar, et al.
Publicado: (2020)

Race/ethnicity-stratified fine-mapping of the MHC locus reveals genetic variants associated with late-onset asthma
por: Lee, Eunice Y., et al.
Publicado: (2023)

Understanding Participation in Genetic Research Among Patients With Multiple Sclerosis: The Influences of Ethnicity, Gender, Education, and Age
por: Cuccaro, Michael L., et al.
Publicado: (2020)

Do Biobank Recall Studies Matter? Long-Term Follow-Up of Research Participants With Familial Hypercholesterolemia
por: Nurm, Miriam, et al.
Publicado: (2022)

Projection of participant recruitment to primary care research
por: White, David, et al.
Publicado: (2015)

Micronuclei in genotoxicity assessment: from genetics to epigenetics and beyond
por: Luzhna, Lidiya, et al.
Publicado: (2013)

Epigenetics of Modified DNA Bases: 5-Methylcytosine and Beyond
por: Kumar, Suresh, et al.
Publicado: (2018)

Intronic variants in inborn errors of metabolism: Beyond the exome
por: Hertzog, Ashley, et al.
Publicado: (2022)

Researchers’ perspectives on pediatric obesity research participant recruitment
por: Parikh, Yasha, et al.
Publicado: (2016)

Diverse coactivator recruitment through differential PPARγ nuclear receptor agonism
por: Lizcano, Fernando, et al.
Publicado: (2013)

Increased NFATC4 Correlates With Poor Prognosis of AML Through Recruiting Regulatory T Cells
por: Zhao, Chong, et al.
Publicado: (2020)

Use of Multivariable Mendelian Randomization to Address Biases Due to Competing Risk Before Recruitment
por: Schooling, C. M., et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_m3a57vm7umehraqelhusl0k3f7