Cargando…

The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience

Transitional care is an essential step for patients with kidney disease, and it is supported by policy documents in the United Kingdom and United States. We have previously described the heterogeneous situation currently found in Europe regarding certain aspects of transitional care: the written tra...

Descripción completa

Detalles Bibliográficos
Autores principales: Scarponi, Dorella, Cangini, Gabriella, Pasini, Andrea, La Scola, Claudio, Mencarelli, Francesca, Bertulli, Cristina, Amabile, Domenico, Busutti, Marco, La Manna, Gaetano, Pession, Andrea
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9445415/
https://www.ncbi.nlm.nih.gov/pubmed/36081623
http://dx.doi.org/10.3389/fped.2022.954641
_version_ 1784783417287639040
author Scarponi, Dorella
Cangini, Gabriella
Pasini, Andrea
La Scola, Claudio
Mencarelli, Francesca
Bertulli, Cristina
Amabile, Domenico
Busutti, Marco
La Manna, Gaetano
Pession, Andrea
author_facet Scarponi, Dorella
Cangini, Gabriella
Pasini, Andrea
La Scola, Claudio
Mencarelli, Francesca
Bertulli, Cristina
Amabile, Domenico
Busutti, Marco
La Manna, Gaetano
Pession, Andrea
author_sort Scarponi, Dorella
collection PubMed
description Transitional care is an essential step for patients with kidney disease, and it is supported by policy documents in the United Kingdom and United States. We have previously described the heterogeneous situation currently found in Europe regarding certain aspects of transitional care: the written transition plan, the educational program, the timing of transfer to adult services, the presence of a coordinator and a dedicated off-site transition clinic. In line with the transition protocol “RISE to transition,” the objective of this paper is to describe the experience of the Bologna center in defining a protocol for the management of chronic kidney disease and the difficulties encountered in implementing it. We apply this model to various chronic diseases along the process of transfer to adult services. It begins when the patient is 14 years old and is complete by the time they reach 18. The family is continuously involved and all the patients in transitional care receive continuous medical care and psychological support. We identified a series of tests designed to measure various criteria: medical condition, psychological state, quality of life, and degree of patient satisfaction, which are repeated at set intervals during the transition process. The organization of the service provided an adequate setting for taking charge of the patients in the long term. The transition program implemented by the adult and pediatric nephrology services of the Bologna center has lowered the risk of discontinuity of care and greatly improved the patients’ awareness of responsibility for their own healthy lifestyle choices.
format Online
Article
Text
id pubmed-9445415
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Frontiers Media S.A.
record_format MEDLINE/PubMed
spelling pubmed-94454152022-09-07 The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience Scarponi, Dorella Cangini, Gabriella Pasini, Andrea La Scola, Claudio Mencarelli, Francesca Bertulli, Cristina Amabile, Domenico Busutti, Marco La Manna, Gaetano Pession, Andrea Front Pediatr Pediatrics Transitional care is an essential step for patients with kidney disease, and it is supported by policy documents in the United Kingdom and United States. We have previously described the heterogeneous situation currently found in Europe regarding certain aspects of transitional care: the written transition plan, the educational program, the timing of transfer to adult services, the presence of a coordinator and a dedicated off-site transition clinic. In line with the transition protocol “RISE to transition,” the objective of this paper is to describe the experience of the Bologna center in defining a protocol for the management of chronic kidney disease and the difficulties encountered in implementing it. We apply this model to various chronic diseases along the process of transfer to adult services. It begins when the patient is 14 years old and is complete by the time they reach 18. The family is continuously involved and all the patients in transitional care receive continuous medical care and psychological support. We identified a series of tests designed to measure various criteria: medical condition, psychological state, quality of life, and degree of patient satisfaction, which are repeated at set intervals during the transition process. The organization of the service provided an adequate setting for taking charge of the patients in the long term. The transition program implemented by the adult and pediatric nephrology services of the Bologna center has lowered the risk of discontinuity of care and greatly improved the patients’ awareness of responsibility for their own healthy lifestyle choices. Frontiers Media S.A. 2022-08-23 /pmc/articles/PMC9445415/ /pubmed/36081623 http://dx.doi.org/10.3389/fped.2022.954641 Text en Copyright © 2022 Scarponi, Cangini, Pasini, La Scola, Mencarelli, Bertulli, Amabile, Busutti, La Manna and Pession. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Pediatrics
Scarponi, Dorella
Cangini, Gabriella
Pasini, Andrea
La Scola, Claudio
Mencarelli, Francesca
Bertulli, Cristina
Amabile, Domenico
Busutti, Marco
La Manna, Gaetano
Pession, Andrea
The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience
title The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience
title_full The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience
title_fullStr The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience
title_full_unstemmed The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience
title_short The process of transition from pediatric to adult healthcare services for nephrological patients: Recommendations vs. reality—A single center experience
title_sort process of transition from pediatric to adult healthcare services for nephrological patients: recommendations vs. reality—a single center experience
topic Pediatrics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9445415/
https://www.ncbi.nlm.nih.gov/pubmed/36081623
http://dx.doi.org/10.3389/fped.2022.954641
work_keys_str_mv AT scarponidorella theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT canginigabriella theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT pasiniandrea theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT lascolaclaudio theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT mencarellifrancesca theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT bertullicristina theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT amabiledomenico theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT busuttimarco theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT lamannagaetano theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT pessionandrea theprocessoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT scarponidorella processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT canginigabriella processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT pasiniandrea processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT lascolaclaudio processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT mencarellifrancesca processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT bertullicristina processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT amabiledomenico processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT busuttimarco processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT lamannagaetano processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience
AT pessionandrea processoftransitionfrompediatrictoadulthealthcareservicesfornephrologicalpatientsrecommendationsvsrealityasinglecenterexperience