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Exploring Urological Malignancies on Pinterest: Content Analysis
BACKGROUND: Pinterest is a visually oriented social media platform with over 250 million monthly users. Previous studies have found misinformative content on genitourinary malignancies to be broadly disseminated on YouTube; however, no study has assessed the quality of this content on Pinterest. OBJ...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9446140/ https://www.ncbi.nlm.nih.gov/pubmed/35994318 http://dx.doi.org/10.2196/36244 |
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author | Herbert, Amber S Hassan, Naeemul Malik, Rena D Loeb, Stacy Myrie, Akya |
author_facet | Herbert, Amber S Hassan, Naeemul Malik, Rena D Loeb, Stacy Myrie, Akya |
author_sort | Herbert, Amber S |
collection | PubMed |
description | BACKGROUND: Pinterest is a visually oriented social media platform with over 250 million monthly users. Previous studies have found misinformative content on genitourinary malignancies to be broadly disseminated on YouTube; however, no study has assessed the quality of this content on Pinterest. OBJECTIVE: Our objective was to evaluate the quality, understandability, and actionability of genitourinary malignancy content on Pinterest. METHODS: We examined 540 Pinterest posts or pins, using the following search terms: “bladder cancer,” “kidney cancer,” “prostate cancer,” and “testicular cancer.” The pins were limited to English language and topic-specific content, resulting in the following exclusions: bladder (n=88), kidney (n=4), prostate (n=79), and testicular cancer (n=10), leaving 359 pins as the final analytic sample. Pinterest pins were classified based on publisher and perceived race or ethnicity. Content was assessed using 2 validated grading systems: DISCERN quality criteria and the Patient Education Materials Assessment Tool. The presence of misinformation was evaluated using a published Likert scale ranging from 1=none to 5=high. RESULTS: Overall, 359 pins with a total of 8507 repins were evaluated. The primary publisher of genitourinary malignancy pins were health and wellness groups (n=162, 45%). Across all genitourinary malignancy pins with people, only 3% (n=7) were perceived as Black. Additionally, Asian (n=2, 1%) and Latinx (n=1, 0.5%) individuals were underrepresented in all pins. Nearly 75% (n=298) of the pins had moderate- to poor-quality information. Misinformative content was apparent in 4%-26% of all genitourinary cancer pins. Understandability and actionability were poor in 55% (n=198) and 100% (n=359) of the pins, respectively. CONCLUSIONS: On Pinterest, the majority of the urological oncology patient-centric content is of low quality and lacks diversity. This widely used, yet unregulated platform has the ability to influence consumers’ health knowledge and decision-making. Ultimately, this can lead to consumers making suboptimal medical decisions. Moreover, our findings demonstrate underrepresentation across many racial and ethnic groups. Efforts should be made to ensure the dissemination of diverse, high-quality, and accurate health care information to the millions of users on Pinterest and other social media platforms. |
format | Online Article Text |
id | pubmed-9446140 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-94461402022-09-07 Exploring Urological Malignancies on Pinterest: Content Analysis Herbert, Amber S Hassan, Naeemul Malik, Rena D Loeb, Stacy Myrie, Akya JMIR Cancer Original Paper BACKGROUND: Pinterest is a visually oriented social media platform with over 250 million monthly users. Previous studies have found misinformative content on genitourinary malignancies to be broadly disseminated on YouTube; however, no study has assessed the quality of this content on Pinterest. OBJECTIVE: Our objective was to evaluate the quality, understandability, and actionability of genitourinary malignancy content on Pinterest. METHODS: We examined 540 Pinterest posts or pins, using the following search terms: “bladder cancer,” “kidney cancer,” “prostate cancer,” and “testicular cancer.” The pins were limited to English language and topic-specific content, resulting in the following exclusions: bladder (n=88), kidney (n=4), prostate (n=79), and testicular cancer (n=10), leaving 359 pins as the final analytic sample. Pinterest pins were classified based on publisher and perceived race or ethnicity. Content was assessed using 2 validated grading systems: DISCERN quality criteria and the Patient Education Materials Assessment Tool. The presence of misinformation was evaluated using a published Likert scale ranging from 1=none to 5=high. RESULTS: Overall, 359 pins with a total of 8507 repins were evaluated. The primary publisher of genitourinary malignancy pins were health and wellness groups (n=162, 45%). Across all genitourinary malignancy pins with people, only 3% (n=7) were perceived as Black. Additionally, Asian (n=2, 1%) and Latinx (n=1, 0.5%) individuals were underrepresented in all pins. Nearly 75% (n=298) of the pins had moderate- to poor-quality information. Misinformative content was apparent in 4%-26% of all genitourinary cancer pins. Understandability and actionability were poor in 55% (n=198) and 100% (n=359) of the pins, respectively. CONCLUSIONS: On Pinterest, the majority of the urological oncology patient-centric content is of low quality and lacks diversity. This widely used, yet unregulated platform has the ability to influence consumers’ health knowledge and decision-making. Ultimately, this can lead to consumers making suboptimal medical decisions. Moreover, our findings demonstrate underrepresentation across many racial and ethnic groups. Efforts should be made to ensure the dissemination of diverse, high-quality, and accurate health care information to the millions of users on Pinterest and other social media platforms. JMIR Publications 2022-08-22 /pmc/articles/PMC9446140/ /pubmed/35994318 http://dx.doi.org/10.2196/36244 Text en ©Amber S Herbert, Naeemul Hassan, Rena D Malik, Stacy Loeb, Akya Myrie. Originally published in JMIR Cancer (https://cancer.jmir.org), 22.08.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Cancer, is properly cited. The complete bibliographic information, a link to the original publication on https://cancer.jmir.org/, as well as this copyright and license information must be included. |
spellingShingle | Original Paper Herbert, Amber S Hassan, Naeemul Malik, Rena D Loeb, Stacy Myrie, Akya Exploring Urological Malignancies on Pinterest: Content Analysis |
title | Exploring Urological Malignancies on Pinterest: Content Analysis |
title_full | Exploring Urological Malignancies on Pinterest: Content Analysis |
title_fullStr | Exploring Urological Malignancies on Pinterest: Content Analysis |
title_full_unstemmed | Exploring Urological Malignancies on Pinterest: Content Analysis |
title_short | Exploring Urological Malignancies on Pinterest: Content Analysis |
title_sort | exploring urological malignancies on pinterest: content analysis |
topic | Original Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9446140/ https://www.ncbi.nlm.nih.gov/pubmed/35994318 http://dx.doi.org/10.2196/36244 |
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